Lately I’ve been getting several emails from fellow CRPS warriors on how to deal with this diagnosis.
I’ve found a great website that can help you guys out..It’s called IPain and they have incredible service and support internationally!
I hope this website gives you guys the help, info, and support that we’re all looking for!
Published by Margaret Renee Twitty
My name is Margaret Twitty and I live in CT. I was diagnosed with Complex Regional Pain Syndrome (CRPS) in Feb 2015 at the age of 23. My goal is to spread awareness of this rare and often misunderstood disorder. I want to turn this struggle into a strength. I want everyone to know that there is someone who will always be in their corner. Always!
View all posts by Margaret Renee Twitty
My Journey With CRPS/RSD 
It’s inspiring hearing your story. I had the exact same thing happen in my right foot after bunion surgery in 2009. I didn’t think I would make it through that. Thankfully I had a great pain management doctor and after using a pain pack from my knee down for several weeks saved my life. After not walking for 4 months I was slowly able to get back on my feet. 13 years later and my foot will never be the same but I run daily and stay active which has helped. CRPS cannot be explained to anyone it’s so severely painful. There is hope though and finding the doctor that knows how to help treat the symptoms.
LikeLike
Hi Jodie (and all), I was recently diagnosed with CRPS from my left knee to toes. I had my left knee broken and the CRPS started 4 weeks into recovery.
Anyways, I am currently on Lyrica – increase in dosage as my body seems to get used it. It helps ease the pain – but not my function.
My question is – did you experience not being able to stand or sit? I cannot have my leg “hang” my foot goes red and the pressure is uncomfortable. My leg feels like it’s in a vice grip, ran over or like have paper cuts.
Did your pain specialist offer anything to help get back the function? I am walking, swimming, exercising but as soon as I stop or do too much – Boom hello pressure and pain.
Looking for advice.
LikeLike