Blog · Complex Regional Pain Syndrome · CRPS · Invisible Illness · Life · Platform · Reflex Sympathetic Dystrophy · RSD · School · Spooners · Truth To Power

CRPS INFORMATION FOR SCHOOLS!

Here's some info on how to help your child deal with CRPS while at school. Thanks crpsnetworkaustralia for the tips! Complex Regional Pain Syndrome (CRPS) is a debilitating condition that is characterised by severe continuous pain, that may be burning, throbbing, stabbing, aching or feel like pins and needles and is considered the highest rated… Continue reading CRPS INFORMATION FOR SCHOOLS!

Complex Regional Pain Syndrome · CRPS · Reflex Sympathetic Dystrophy · RSD

Are Doctors Being Trained Enough To Treat Chronic Pain?

Are Doctors Being Trained Enough To Treat Chronic Pain? Not enough doctors have been adequately trained to treat chronic pain, according to a new review of studies. Published in the Journal of the American Osteopathic Association, researchers from Henry Ford Hospital reviewed studies and standards regarding the management of chronic pain in patients, as well… Continue reading Are Doctors Being Trained Enough To Treat Chronic Pain?

Complex Regional Pain Syndrome · CRPS · Reflex Sympathetic Dystrophy · RSD

Paula Abdul: Putting the Spotlight on Rare Disease 

SMILING THROUGH THE PAIN: Paula Abdul maintains a positive attitude throughout her battle with chronic pain caused by RSD. Pop icon, Paula Abdul, opens up about her daily struggle with Reflex Sympathetic Dystrophy. Mediaplanet: What is RSD and how does it manifest itself? How would you describe RSD? Paula Abdul: RSD stands for “Reflex Sympathetic Dystrophy.”  It’s… Continue reading Paula Abdul: Putting the Spotlight on Rare Disease 

Blog · Complex Regional Pain Syndrome · CRPS · Invisible Illness · legacy · Life · Personal · Platform · Reflex Sympathetic Dystrophy · RSD · Truth To Power

Support With CRPS

Lately I've been getting several emails from fellow CRPS warriors on how to deal with this diagnosis. I've found a great website that can help you guys out..It's called IPain and they have incredible service and support internationally! I hope this website gives you guys the help, info, and support that we're all looking for!

Blog · Complex Regional Pain Syndrome · CRPS · Reflex Sympathetic Dystrophy · RSD

My Battle With CRPS/RSD

  Imagine what it would be like to endure an external numbness with such an internal burning sensation with pressure so incredibly intense that the most potent pain relievers are completely ineffective, leaving you with the feeling that your body is actually on fire, ready to implode any moment. You lose the ability to tell… Continue reading My Battle With CRPS/RSD

Complex Regional Pain Syndrome · CRPS · Reflex Sympathetic Dystrophy · RSD

A Letter to Patients With Chronic Disease 

A Doctor's Letter to Patients with a Chronic Illness As chronic pain patients, we often get frustrated and even angry with doctors. We just want a doctor who will understand how much pain we're in and will try to help us get some relief. But sometimes doctors seem like they'd rather not be bothered with… Continue reading A Letter to Patients With Chronic Disease 

Blog · Complex Regional Pain Syndrome · CRPS · Invisible Illness · legacy · Life · Personal · Photography · photoshoot · Platform · quote · Reflex Sympathetic Dystrophy · RSD · Spooners · Truth To Power

Peace Is Possible.

“I create beautiful art, so I can look back on the life my body fell short of in such a way that it brings me peace.” Nikki Rowe .

Advertisements
Art · Blog · Complex Regional Pain Syndrome · CRPS · Invisible Illness · legacy · Life · Personal · Photography · photoshoot · Platform · quote · Reflex Sympathetic Dystrophy · RSD · Spooners · Truth To Power

I Will Overcome This!

Ache my bones, flame my muscles, tingle my nerves, but you will never taint my beautiful mind & I will overcome this condition with the belief that I already have. - CRPS AWARENESS - Nikki Rowe

Blog · Complex Regional Pain Syndrome · CRPS · Invisible Illness · Life · Platform · Reflex Sympathetic Dystrophy · RSD · Spooners · Truth To Power

Coping Strategies

It can be difficult to accept that you’ve developed a chronic medical condition that keeps you from returning to activities that you once enjoyed. You may feel that it’s unfair how your life has changed. Of course you’re right. But thousands of members of the RSDSA community will tell you that you can live a… Continue reading Coping Strategies

Blog · Complex Regional Pain Syndrome · CRPS · Invisible Illness · Life · Platform · Reflex Sympathetic Dystrophy · RSD · Spooners · Truth To Power

Definition of CRPS

CRPS-I is a syndrome characterized by a continuing (spontaneous and/or evoked) regional pain that is seemingly disproportionate in time or degree to the usual course of pain after trauma or other lesion. The pain is regional (not in a specific nerve territory or dermatome) and usually has a distal predominance of abnormal sensory, motor, sudomotor,… Continue reading Definition of CRPS

Blog · Complex Regional Pain Syndrome · CRPS · honor · Invisible Illness · legacy · Life · Personal · Platform · Reflex Sympathetic Dystrophy · RSD · Sports · Truth To Power

Pain Makes Us Who We Are 

  Let your pain empower you, Not all of us are destined to break. And if you find yourself broken, Allow for each broken piece To faithfully make sense I would never put public speaking on my "special skills" list, but over these past years I have been called to do just that more than a number of… Continue reading Pain Makes Us Who We Are 

Art · Blog · Complex Regional Pain Syndrome · CRPS · Invisible Illness · legacy · Life · Personal · Photography · Platform · quote · Reflex Sympathetic Dystrophy · RSD · Truth To Power

Rebel To The End!

I tell myself I’ll make it, rebel to the end. Try to look away from the colors turning in my skin, won’t let this bring me down and diminish me from within. I try to bring my soul fire out and not let it take me through my skin. This pain can try to bury… Continue reading Rebel To The End!

Art · Blog · Complex Regional Pain Syndrome · CRPS · Invisible Illness · legacy · Life · Personal · Photography · Platform · quote · Reflex Sympathetic Dystrophy · RSD · Spooners · Truth To Power

Seeing The Beauty While Living CRPS!

What is beauty really? To me it has nothing to do with the way one looks, it’s what lies beneath the surface. It’s the way you carry yourself when in the midst of destruction. Its the way you love back in the midst of beyond crippling pain. It’s the way you love the ones who… Continue reading Seeing The Beauty While Living CRPS!

Blog · Complex Regional Pain Syndrome · CRPS · Invisible Illness · legacy · Life · Personal · Platform · Reflex Sympathetic Dystrophy · RSD · Truth To Power

Ten Steps To Overcoming Chronic Pain

YES, CRPS/RSD IS A TYPE OF CHRONIC PAIN!  Chronic pain is a serious problem but is often made worse by misinformation, negative attitudes and beliefs, outdated ideas, negative emotions. It is recognised that chronic pain is often mismanaged, not because we lack adequate treatments, but because of fear and ignorance. These steps are designed to… Continue reading Ten Steps To Overcoming Chronic Pain