Recently a lot of people have been asking me what is CRPS/RSD and how did I get it. I never realized that I didn't share how all this came to be. So without further ado here is my story! ------ A horse and having a bunion surgery! I was stepped on a 900lb horse in… Continue reading How It Happened!
CRPS: The Silent Injury Exposed There are many types of injuries and conditions that can afflict us, and nerve damage can be among the worst. There may be no way to find out if nerve damage is caused by something major or minor, and in some cases, you simply have to go through many tests… Continue reading CRPS & The Legal System
“We are not meant to be boxed in. To be labeled. To be defined by the outside world so that it may feel more comfortable when it looks at us. So that it feels like it has us figured out. We are multifaceted. We are MANY things.” Sophia Bush What are the MANY things that… Continue reading I AM MANY
Having CRPS you have no idea what the day will bring! CRPS is an EVERYDAY thing! It’s been a long day! I’ve been in and out of one urgent care clinic to be sent to another for a full work up. I left the house at 9:30ish this morning and didn’t get back home until… Continue reading CRPS Is An Everyday Thing!
A few weeks ago I was contacted by Diamond Headache Clinic, the oldest and largest headache center in Chicago, Illinois. They asked me to help raise awareness about invisible illnesses by sharing their Slideshow. This incredible Clinic created a presentation about the different types of migraine headaches and symptoms in children. Children between the ages of… Continue reading Diamond Headache Clinic
Some are teachers, some are musicians, and some legacies are in themselves dynasties. But my family’s legacy has a number of things. For instance.. Girls have ALWAYS been born first on my dad’s side of the family, my ancestors come from slavery, my dad, my brother, and I can’t read music but we know how… Continue reading Every family has a legacy, and this is mine
The stories we want to hear the least are the ones we need to hear the most. To my fellow Sister Survivors and Army Of Women. I’m so proud of every one you! You showed no fear and looked evil in the eye for the very last time! As a former USA Gymnastics gymnast, who… Continue reading Dear Sister Survivors
Dear World, My name is Margaret Twitty and I am a 27 year old suffering with Complex Regional Pain Syndrome/ Reflex Sympathetic Dystrophy also called (CRPS/RSD). You may know me personally or you may not, but who I am is not really important, only the fact that I live in chronic pain. Having chronic pain… Continue reading A Letter To The World
Let your pain empower you, Not all of us are destined to break. And if you find yourself broken, Allow for each broken piece To faithfully make sense I would never put public speaking on my "special skills" list, but over these past years I have been called to do just that more than a number of times.… Continue reading Pain Makes Us Who We Are
Chronic Pain: A Burden Often Shared By JANE E. BRODY Chronic pain is a family problem. When people experience unrelenting pain, everyone they live with and love is likely to suffer. The frustration, anxiety, stress and depression that often go with chronic pain can also afflict family members and friends who feel helpless to provide… Continue reading Chronic Pain: A Burden Often Shared
When I thought I couldn't be more prouder of my cousin AJ Hawk, this piece done by the The Players Tribune proved me wrong! To me AJ Hawk isn't just a football player he's so much more than that. AJ's a son, father, husband, brother, and cousin. AJ is someone you can trust, someone who's… Continue reading Love Of The Game
We all have a Family Legacy each and every one of us. Some good and some not so good but we all have one. Here is My Family's Legacy. My family is made up of service.. Service to the Military, to the Medical Field, to the Community. My Great-Uncle survived Pearl Harbor. My Grandfather… Continue reading My Family’s Legacy!
Theses are the moments that help change our lives, these are the very collisions that help make us who we are.
So often we find ourselves in situations where people are trying their best to help us when in reality they very well may be hurting us. I can see how being a loved one of someone with CRPS can be challenging in more ways than one. You may find yourself not knowing what we want… Continue reading 5 Do’s and Don’ts When It Comes to People with CRPS
"We’re big believers in Margaret Twitty’s favorite saying,"Know The Person Not The Disability.” But sometimes, learning more about a disability is an important way to understand what others around us are going through. With that in mind, we asked Margaret Twitty, founder of the 2/17 clothing line and Complex Regional Pain Syndrome sufferer to share… Continue reading She’s Fit To Lead Article
“I am 24 and performed gymnastics practically my whole life. I was recently diagnosed with Complex Regional Pain Syndrome (CRPS), a rare neurological disorder. It began after I had suffered trauma to my right foot when a horse stepped on it. A few months later I had surgery on the same foot to correct a… Continue reading Move Forward PT
Hi my name is Margaret Twitty and I live in Connecticut. For 18 years I was an Athlete more specifically I was a Gymnast for 18 years. But that all changed on February 17, 2015 when I was diagnosed with CRPS. CRPS is a rare illness/diagnosis called 'Complex Regional Pain Syndrome' (CRPS). CRPS is… Continue reading Sharing My Story
HAPPY NEW YEARS! I just want to let everyone know that I’ve been getting a lot more emails recently from people that are struggling with CRPS, I’m trying to email everyone as fast as I possibly can. So if I don’t email you right away that’s probably why. If it's taking me a few… Continue reading Reaching Out
What is "The LiftUp Lifestyle" The LiftUp Lifestyle is a community that helps you Connect, Encourage, and Support one another. Their Value is- "To put meaning behind everything that you do. To look at the people to the right of you and to the left of you with compassion. To see others as an extension of… Continue reading The LiftUp Lifestyle
#IAMAVOTER! It has taken me 26 years to realize that my voice does matters, that my vote does matters! I was one of those people who never fully understood the way government works or how it applies to me. It took me being diagnosed with CRPS a very rare, very painful chronic diagnosis that I… Continue reading WHY I VOTED
I want to share a book that I’ve been reading lately that has been helping me. The book is called “The Hidden Gifts Within the Trauma of Sexual Abuse” The author Keira Poulsen reached out to me on Instagram sharing with me about how she recently came forward with her own truth about being sexually… Continue reading The Hidden Gifts Within The Trauma Of Sexual Abuse.
Today is National Voter Registration Day! This year I became a first time voter! I was always worried about if I became registered then I would have to do jury duty, that was the ONLY reason stopping me from voting! What made me decide to register was the outcome of the 2016 elections, the shooting… Continue reading I AM A VOTER
This is Jeshua he is 14 years old and I consider him to be a little brother to me. Jesh is an amazing young man whom has over come some tough odds through his life with cerebral palsy. Jeshua suffered multiple seizures recently and is hospitalized In the PICU in Myrtle Beach. Unfortunately his insurance… Continue reading PLEASE HELP!
Tree Hill is just a place somewhere in the world. Maybe it’s a lot like your world, maybe it’s nothing like it. But if you look closer, you might see someone like you, or someone like you. Someone trying to find their way. Someone trying to find their place. Someone trying to find their self.… Continue reading How To Help North Carolina!