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Seeing The Beauty While Living CRPS!

What is beauty really? To me it has nothing to do with the way one looks, it’s what lies beneath the surface. It’s the way you carry yourself when in the midst of destruction. Its the way you love back in the midst of beyond crippling pain. It’s the way you love the ones who… Continue reading Seeing The Beauty While Living CRPS!

Blog · Complex Regional Pain Syndrome · CRPS · Invisible Illness · legacy · Life · Personal · Platform · Reflex Sympathetic Dystrophy · RSD · Truth To Power

Support With CRPS

Lately I've been getting several emails from fellow CRPS warriors on how to deal with this diagnosis. I've found a great website that can help you guys out..It's called IPain and they have incredible service and support internationally! I hope this website gives you guys the help, info, and support that we're all looking for!

Blog · Complex Regional Pain Syndrome · CRPS · Reflex Sympathetic Dystrophy · RSD

My Battle With CRPS/RSD

  Imagine what it would be like to endure an external numbness with such an internal burning sensation with pressure so incredibly intense that the most potent pain relievers are completely ineffective, leaving you with the feeling that your body is actually on fire, ready to implode any moment. You lose the ability to tell… Continue reading My Battle With CRPS/RSD

Complex Regional Pain Syndrome · CRPS · Reflex Sympathetic Dystrophy · RSD

A Letter to Patients With Chronic Disease 

A Doctor's Letter to Patients with a Chronic Illness As chronic pain patients, we often get frustrated and even angry with doctors. We just want a doctor who will understand how much pain we're in and will try to help us get some relief. But sometimes doctors seem like they'd rather not be bothered with… Continue reading A Letter to Patients With Chronic Disease 

Blog · Complex Regional Pain Syndrome · CRPS · Invisible Illness · legacy · Life · Personal · Platform · Reflex Sympathetic Dystrophy · RSD · Truth To Power

Ten Steps To Overcoming Chronic Pain

YES, CRPS/RSD IS A TYPE OF CHRONIC PAIN!  Chronic pain is a serious problem but is often made worse by misinformation, negative attitudes and beliefs, outdated ideas, negative emotions. It is recognised that chronic pain is often mismanaged, not because we lack adequate treatments, but because of fear and ignorance. These steps are designed to… Continue reading Ten Steps To Overcoming Chronic Pain

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Complex Regional Pain Syndrome · CRPS · Reflex Sympathetic Dystrophy · RSD

Are Doctors Being Trained Enough To Treat Chronic Pain?

Are Doctors Being Trained Enough To Treat Chronic Pain? Not enough doctors have been adequately trained to treat chronic pain, according to a new review of studies. Published in the Journal of the American Osteopathic Association, researchers from Henry Ford Hospital reviewed studies and standards regarding the management of chronic pain in patients, as well… Continue reading Are Doctors Being Trained Enough To Treat Chronic Pain?

Blog · Complex Regional Pain Syndrome · CRPS · Invisible Illness · legacy · Life · Personal · Platform · Reflex Sympathetic Dystrophy · RSD · Sports · Truth To Power

Pain Matters Documentary Film 

Discovery Channel Documentary "Pain Matters" Chronicles the Burdens of Living with Chronic Pain. “Pain Matters” chronicles the stories of six people with pain and their loved ones: a U.S. Navy veteran who sustained debilitating injuries while serving in Iraq, a two-time Stanley Cup-winning hockey player, a car accident survivor, and individuals with osteoarthritis, fibromyalgia and… Continue reading Pain Matters Documentary Film 

Complex Regional Pain Syndrome · CRPS · Reflex Sympathetic Dystrophy · RSD

Paula Abdul: Putting the Spotlight on Rare Disease 

SMILING THROUGH THE PAIN: Paula Abdul maintains a positive attitude throughout her battle with chronic pain caused by RSD. Pop icon, Paula Abdul, opens up about her daily struggle with Reflex Sympathetic Dystrophy. Mediaplanet: What is RSD and how does it manifest itself? How would you describe RSD? Paula Abdul: RSD stands for “Reflex Sympathetic Dystrophy.”  It’s… Continue reading Paula Abdul: Putting the Spotlight on Rare Disease 

Blog · Complex Regional Pain Syndrome · CRPS · Invisible Illness · legacy · Life · Personal · Photography · photoshoot · Reflex Sympathetic Dystrophy · RSD · Truth To Power

Don’t Give Up On Me!

You deserve people who don’t give up on you, it takes strong healthy people in your life, people who don’t crumble easy to stay strong with you through this. Of course if you have CRPS, most of your fair weather friends are probably gone. I’ve found the ones still here are pretty legit at this… Continue reading Don’t Give Up On Me!

#JusticeForJoey · #LightItUpJoey · Blog · Connecticut · honor · Joey Gingerella · legacy · Life · Personal · Platform · Sports · Truth To Power

Honoring A Hero!

I can FINALLY tell the world what I’ve been working on with my Representative Chris Conley since November of last year! After the tragic lose of our friend and family member Joey Gingerella, I reached out to our high school Fitch High to see if they could have a plaque or something that could be… Continue reading Honoring A Hero!

Blog · Clothing Line · Complex Regional Pain Syndrome · CRPS · Fashion · honor · Invisible Illness · legacy · Life · Personal · Photography · photoshoot · Platform · Reflex Sympathetic Dystrophy · RSD · Truth To Power

She’s Fit To Lead Article 

"We’re big believers in Margaret Twitty’s favorite saying,"Know The Person Not The Disability.” But sometimes, learning more about a disability is an important way to understand what others around us are going through. With that in mind, we asked Margaret Twitty, founder of the 2/17 clothing line and Complex Regional Pain Syndrome sufferer to share… Continue reading She’s Fit To Lead Article 

Blog · Complex Regional Pain Syndrome · CRPS · Invisible Illness · legacy · Life · Personal · Platform · Reflex Sympathetic Dystrophy · RSD · Truth To Power

5 Do’s and Don’ts When It Comes to People with CRPS

So often we find ourselves in situations where people are trying their best to help us when in reality they very well may be hurting us. I can see how being a loved one of someone with CRPS can be challenging in more ways than one. You may find yourself not knowing what we want… Continue reading 5 Do’s and Don’ts When It Comes to People with CRPS