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Thank You ABC’s Station 19

Dear Station 19 & Boris Kodjoe, Thank you for writing in the struggles that so many of us face when it comes to the rare and incurable illness that is CRPS. When I saw last night's new episode I was thankful that our stories will FINALLY be told through the eyes of a character. Boris… Continue reading Thank You ABC’s Station 19

Article · Blog · Complex Regional Pain Syndrome · CRPS · Invisible Illness · legacy · Life · news · Pain · Personal · Platform · Reflex Sympathetic Dystrophy · RSD · Spooners · Website

What a Day With Complex Regional Pain Syndrome Feels Like

PERFECT WAY TO DESCRIBE WHAT LIFE IS LIKE WITH CRPS! Can a person imagine something they have never seen or experienced? Does imagination have limitations? No matter how hard I try to explain the sound of the crashing waves, the feeling of the sand in my toes, and the beautiful horizon, to someone who has… Continue reading What a Day With Complex Regional Pain Syndrome Feels Like

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Support With CRPS

Lately I've been getting several emails from fellow CRPS warriors on how to deal with this diagnosis. I've found a great website that can help you guys out..It's called IPain and they have incredible service and support internationally! I hope this website gives you guys the help, info, and support that we're all looking for!

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Kobe Bryant

Kobe Bryant was a basketball player, he was also a son, a husband, a father, somebody’s teammate, and somebody’s friend. I never knew Kobe Bryant and I guess now I never will. Did you ever wonder what it would be like if you werent you anymore? If you were suddenly gone, how would your world… Continue reading Kobe Bryant

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Favorite Holiday Recipes!

I've always loved this time of year! The decorations, the smell of Christmas Trees, that feeling of calmness and purity when snow falls and it hasn't been touched by human. I also love the holiday traditions when it comes to food! My family makes Buckeyes! My mom's side of the family is from Ohio, and… Continue reading Favorite Holiday Recipes!

Article · Blog · Complex Regional Pain Syndrome · CRPS · Invisible Illness · legacy · Life · news · Pain · Personal · Photography · Platform · Reflex Sympathetic Dystrophy · RSD · Spooners · Website

Twelve Things People with CRPS Want You To Know About Them During the Holiday Season

Tis the season to be jolly! Or at least, that’s what I’ve heard. I love the holiday season. There are beautiful lights and decorations everywhere, there are people singing cheery songs, there are fun, mindless movie marathons on TV, there is delicious food- all of my favorite things wrapped into one season. Maybe that’s why… Continue reading Twelve Things People with CRPS Want You To Know About Them During the Holiday Season

Article · Blog · Complex Regional Pain Syndrome · CRPS · Invisible Illness · legacy · Life · Pain · Personal · Platform · Reflex Sympathetic Dystrophy · RSD · Spooners · Website

A Letter to Children Diagnosed With CRPS, From an Adult Who’s Been There

Dear child with CRPS, You are young, and this diagnosis has not come at an ideal time in your life. I mean, is there an ideal time to be diagnosed with complex regional pain syndrome (CRPS) — one of the most painful conditions known? Let me assure you though, everything is going to be OK.… Continue reading A Letter to Children Diagnosed With CRPS, From an Adult Who’s Been There