Blog · Connecticut · Groton Life · legacy · Life · Personal · Platform · Small Town Life

Looking Towards The Future

I’ve lived in Groton, Connecticut for the past 23 years. I moved here when I was 4 safe to say I was pretty much raised here. I thought I knew and saw everything that my small town had to offer. I knew the streets, the buildings, the people, the changing of the crazy seasons that… Continue reading Looking Towards The Future

Blog · Complex Regional Pain Syndrome · CRPS · Invisible Illness · legacy · Life · Personal · Platform · Reflex Sympathetic Dystrophy · RSD · Truth To Power

Support With CRPS

Lately I've been getting several emails from fellow CRPS warriors on how to deal with this diagnosis. I've found a great website that can help you guys out..It's called IPain and they have incredible service and support internationally! I hope this website gives you guys the help, info, and support that we're all looking for!

Blog · Clothing Line · Complex Regional Pain Syndrome · CRPS · Fashion · honor · Invisible Illness · legacy · Life · Personal · Platform · Reflex Sympathetic Dystrophy · RSD · Truth To Power

A Letter To The World 

Dear World, My name is Margaret Twitty and I am a 27 year old suffering with Complex Regional Pain Syndrome/ Reflex Sympathetic Dystrophy also called (CRPS/RSD).  You may know me personally or you may not, but who I am is not really important, only the fact that I live in chronic pain.  Having chronic pain… Continue reading A Letter To The World 

Blog · Clothing Line · Complex Regional Pain Syndrome · CRPS · Fashion · legacy · Life · Personal · Reflex Sympathetic Dystrophy · RSD

Sharing My Story 

Hi my name is Margaret Twitty and I live in Connecticut. For 18 years I was an Athlete more specifically I was a Gymnast for 18 years.  But that all changed on February 17, 2015 when I was diagnosed with CRPS. CRPS is a rare illness/diagnosis called 'Complex Regional Pain Syndrome' (CRPS).   CRPS is… Continue reading Sharing My Story 

Blog · Complex Regional Pain Syndrome · CRPS · Reflex Sympathetic Dystrophy · RSD

My Battle With CRPS/RSD

  Imagine what it would be like to endure an external numbness with such an internal burning sensation with pressure so incredibly intense that the most potent pain relievers are completely ineffective, leaving you with the feeling that your body is actually on fire, ready to implode any moment. You lose the ability to tell… Continue reading My Battle With CRPS/RSD

Complex Regional Pain Syndrome · CRPS · Reflex Sympathetic Dystrophy · RSD

A Letter to Patients With Chronic Disease 

A Doctor's Letter to Patients with a Chronic Illness As chronic pain patients, we often get frustrated and even angry with doctors. We just want a doctor who will understand how much pain we're in and will try to help us get some relief. But sometimes doctors seem like they'd rather not be bothered with… Continue reading A Letter to Patients With Chronic Disease 

Blog · Complex Regional Pain Syndrome · CRPS · Invisible Illness · legacy · Life · Personal · Platform · Reflex Sympathetic Dystrophy · RSD

Oh, What Now!

Around 1pm on Friday I fell off a ladder that I was using to paint my room and landed on my back, my right foot (my bad foot), my side ribs, my left shoulder, my elbow, my arm, and my head. I got several X-Rays done and a CAT Scan to make sure that I… Continue reading Oh, What Now!

Blog · Complex Regional Pain Syndrome · CRPS · Invisible Illness · legacy · Life · Personal · Photography · Platform · Reflex Sympathetic Dystrophy · RSD · Sports

Brooklyn Bedding 3 Years Later And Counting!

After almost 3 years I’m still in love with my Brooklyn Bedding as I was day I got it! I’ve gone through so many mattresses in my life.. I always think I’ve FINALLY found the PERFECT one but then something happens. I happened to have come across brooklyn bedding thanks to my cousin.. some of… Continue reading Brooklyn Bedding 3 Years Later And Counting!

Blog · Complex Regional Pain Syndrome · CRPS · Invisible Illness · legacy · Life · Personal · Platform · Reflex Sympathetic Dystrophy · RSD · Sponsor · Work

Not Being Able To Work Because Of Invisible Illness.

“No one realizes that a job does more for you than just pay your bills. It is part of what gives you self-esteem. When you can’t work anymore, it is very hard to see yourself as worth something to people. You feel isolated because everyone is so busy with their lives they don’t have time… Continue reading Not Being Able To Work Because Of Invisible Illness.

Blog · Complex Regional Pain Syndrome · CRPS · Invisible Illness · legacy · Life · Personal · Platform · Reflex Sympathetic Dystrophy · RSD · Truth To Power

CRPS FACTS!

I have been living with CRPS for about 4 years now. CRPS is the most painful disease known to mankind. More painful than unprepared child birth, stage 4 cancer, and even amputation according to the McGill Pain Index. The pain never stops and when it flares up I can be in bed for days or… Continue reading CRPS FACTS!

Blog · Complex Regional Pain Syndrome · CRPS · Invisible Illness · legacy · Life · Personal · Platform · Reflex Sympathetic Dystrophy · RSD · Truth To Power

How It Happened!

Recently a lot of people have been asking me what is CRPS/RSD and how did I get it. I never realized that I didn't share how all this came to be. So without further ado here is my story! ------ A horse and having a bunion surgery! I was stepped on a 900lb horse in… Continue reading How It Happened!

Blog · CRPS · Invisible Illness · Life · Personal · Platform · Reflex Sympathetic Dystrophy · RSD · Truth To Power

CRPS & The Legal System

CRPS: The Silent Injury Exposed There are many types of injuries and conditions that can afflict us, and nerve damage can be among the worst. There may be no way to find out if nerve damage is caused by something major or minor, and in some cases, you simply have to go through many tests… Continue reading CRPS & The Legal System

Blog · Complex Regional Pain Syndrome · CRPS · Fashion · Guest Post · Invisible Illness · legacy · Life · Personal · Photography · Platform · Reflex Sympathetic Dystrophy · RSD

The LiftUp Lifestyle

What is "The LiftUp Lifestyle" The LiftUp Lifestyle is a community that helps you Connect, Encourage, and Support one another. Their Value is- "To put meaning behind everything that you do. To look at the people to the right of you and to the left of you with compassion. To see others as an extension of… Continue reading The LiftUp Lifestyle