“I create beautiful art, so I can look back on the life my body fell short of in such a way that it brings me peace.” Nikki Rowe .
YES, CRPS/RSD IS A TYPE OF CHRONIC PAIN! Chronic pain is a serious problem but is often made worse by misinformation, negative attitudes and beliefs, outdated ideas, negative emotions. It is recognised that chronic pain is often mismanaged, not because we lack adequate treatments, but because of fear and ignorance. These steps are designed to… Continue reading Ten Steps To Overcoming Chronic Pain
Discovery Channel Documentary "Pain Matters" Chronicles the Burdens of Living with Chronic Pain. “Pain Matters” chronicles the stories of six people with pain and their loved ones: a U.S. Navy veteran who sustained debilitating injuries while serving in Iraq, a two-time Stanley Cup-winning hockey player, a car accident survivor, and individuals with osteoarthritis, fibromyalgia and… Continue reading Pain Matters Documentary Film
"We’re big believers in Margaret Twitty’s favorite saying,"Know The Person Not The Disability.” But sometimes, learning more about a disability is an important way to understand what others around us are going through. With that in mind, we asked Margaret Twitty, founder of the 2/17 clothing line and Complex Regional Pain Syndrome sufferer to share… Continue reading She’s Fit To Lead Article
“I am 24 and performed gymnastics practically my whole life. I was recently diagnosed with Complex Regional Pain Syndrome (CRPS), a rare neurological disorder. It began after I had suffered trauma to my right foot when a horse stepped on it. A few months later I had surgery on the same foot to correct a… Continue reading Move Forward PT
Chronic Pain: A Burden Often Shared By JANE E. BRODY Chronic pain is a family problem. When people experience unrelenting pain, everyone they live with and love is likely to suffer. The frustration, anxiety, stress and depression that often go with chronic pain can also afflict family members and friends who feel helpless to provide… Continue reading Chronic Pain: A Burden Often Shared
I have been following this AMAZING CRPS/RSD Warrior on Instagram.. ALL her posts are about the fight and struggle that we all deal with by living with this cruel diagnosis! I'll be posting her photos/art work on here because her words are on point and hits deep down! Here's the first post- • “If I… Continue reading Free from the shackles of chronic pain.
There are a lot of ways to be lost at sea. It’s not the same as being abandoned or stranded. Those thing happen beyond our control sometimes, we just take a wrong turn too close to the tide. The waters rise and sweep us away. We fight the currents for a way back to dry… Continue reading Lost At Sea
Dear World, My name is Margaret Twitty and I am a 27 year old suffering with Complex Regional Pain Syndrome/ Reflex Sympathetic Dystrophy also called (CRPS/RSD). You may know me personally or you may not, but who I am is not really important, only the fact that I live in chronic pain. Having chronic pain… Continue reading A Letter To The World
Ten Tips For Communicating With A Person Suffering From Chronic Pain by Mark Grant MA People with chronic pain communicate differently to well people. Tired, irritable and withdrawn, they are often reluctant or unable to talk about their feelings. Or they may talk in a kind of 'code' and tell you they feel fine when… Continue reading Trying To Understand