This is what a day in my life used be like for 6 years! But after countless physical therapy sessions, doctors appointments, therapy sessions with and without my mom, and learning to accept that this is my new life, my new normal.. I’ve finally reached the point in my life that I can actually be… Continue reading What a Day With Complex Regional Pain Syndrome Feels Like…
CRPS— One of the more dramatic and visible forms of amplified pain is complex regional pain syndrome (CRPS) which was formerly known as reflex sympathetic dystrophy (RSD). This is a very painful condition that typically affects a hand or foot with associated signs of the autonomic dysfunction, that is, the hand or foot becomes swollen, cold… Continue reading CRPS in Teens
Dear child with CRPS, You are young, and this diagnosis has not come at an ideal time in your life. I mean, is there an ideal time to be diagnosed with complex regional pain syndrome (CRPS) — one of the most painful conditions known? Let me assure you though, everything is going to be OK. You will… Continue reading A Letter to Children Diagnosed With CRPS, From an Adult That’s Been There.
A few days ago I learned that my dad has COVID 19. My dad has done everything that he can to stay safe from this virus but the thing is, my dad is one of the countless doctors and nurses that continue to put themselves on the front line for others everyday. My dad is… Continue reading More Than Statistics.
Do you ever wonder how long it takes to change your life? What measure of time is enough to be life altering? Is it four years like high school? One year? Can your life change in a month, or a week, or a single day? We’re always in a hurry to grow up, to go… Continue reading Forever Our Hero