With everything going on in our world right now it’s so easy to feel the uncertainty all around us. We try to get through the day and hope for a better tomorrow, and we do it all again the next day, until we feel ourselves start breaking down and giving up. I’m here to let… Continue reading It’s Okay To Not Be Okay!
Dear Station 19 & Boris Kodjoe, Thank you for writing in the struggles that so many of us face when it comes to the rare and incurable illness that is CRPS. When I saw last night's new episode I was thankful that our stories will FINALLY be told through the eyes of a character. Boris… Continue reading Thank You ABC’s Station 19
Tis the season to be jolly! Or at least, that’s what I’ve heard. I love the holiday season. There are beautiful lights and decorations everywhere, there are people singing cheery songs, there are fun, mindless movie marathons on TV, there is delicious food- all of my favorite things wrapped into one season. Maybe that’s why… Continue reading Twelve Things People with CRPS Want You To Know About Them During the Holiday Season
Dear child with CRPS, You are young, and this diagnosis has not come at an ideal time in your life. I mean, is there an ideal time to be diagnosed with complex regional pain syndrome (CRPS) — one of the most painful conditions known? Let me assure you though, everything is going to be OK.… Continue reading A Letter to Children Diagnosed With CRPS, From an Adult Who’s Been There
Do you ever wonder how long it takes to change your life? What measure of time is enough to be life altering? Is it four years like high school? One year? Can your life change in a month, or a week, or a single day? We’re always in a hurry to grow up, to go… Continue reading Forever Our Hero