HAPPY NEW YEARS! I just want to let everyone know that I’ve been getting a lot more emails recently from people that are struggling with CRPS, I’m trying to email everyone as fast as I possibly can. So if I don’t email you right away that’s probably why. If it's taking me a few… Continue reading Reaching Out
What is "The LiftUp Lifestyle" The LiftUp Lifestyle is a community that helps you Connect, Encourage, and Support one another. Their Value is- "To put meaning behind everything that you do. To look at the people to the right of you and to the left of you with compassion. To see others as an extension of… Continue reading The LiftUp Lifestyle
#IAMAVOTER! It has taken me 26 years to realize that my voice does matters, that my vote does matters! I was one of those people who never fully understood the way government works or how it applies to me. It took me being diagnosed with CRPS a very rare, very painful chronic diagnosis that I… Continue reading WHY I VOTED
This is Jeshua he is 14 years old and I consider him to be a little brother to me. Jesh is an amazing young man whom has over come some tough odds through his life with cerebral palsy. Jeshua suffered multiple seizures recently and is hospitalized In the PICU in Myrtle Beach. Unfortunately his insurance… Continue reading PLEASE HELP!
“We are not meant to be boxed in. To be labeled. To be defined by the outside world so that it may feel more comfortable when it looks at us. So that it feels like it has us figured out. We are multifaceted. We are MANY things.” Sophia Bush What are the MANY things that… Continue reading I AM MANY
Having CRPS you have no idea what the day will bring! CRPS is an EVERYDAY thing! It’s been a long day! I’ve been in and out of one urgent care clinic to be sent to another for a full work up. I left the house at 9:30ish this morning and didn’t get back home until… Continue reading CRPS Is An Everyday Thing!
A few weeks ago I was contacted by Diamond Headache Clinic, the oldest and largest headache center in Chicago, Illinois. They asked me to help raise awareness about invisible illnesses by sharing their Slideshow. This incredible Clinic created a presentation about the different types of migraine headaches and symptoms in children. Children between the ages of… Continue reading Diamond Headache Clinic
After reading CNBC story about 23andMe and Breast Cancer I had to share my story! When I did my 23andMe I was lucky enough to know beforehand that I didn’t have the BC (Breast Cancer) gene. My dad’s side of the family possibly carries the gene. My Dad’s Twin Sister had BC, another Sister of… Continue reading 23andMe + Breast Cancer
The stories we want to hear the least are the ones we need to hear the most. To my fellow Sister Survivors and Army Of Women. I’m so proud of every one you! You showed no fear and looked evil in the eye for the very last time! As a former USA Gymnastics gymnast, who… Continue reading Dear Sister Survivors
Dear World, My name is Margaret Twitty and I am a 26 year old suffering with Complex Regional Pain Syndrome/ Reflex Sympathetic Dystrophy also called (CRPS/RSD). You may know me personally or you may not, but who I am is not really important, only the fact that I live in chronic pain. Having chronic pain… Continue reading A Letter To The World