“No one realizes that a job does more for you than just pay your bills. It is part of what gives you self-esteem. When you can’t work anymore, it is very hard to see yourself as worth something to people. You feel isolated because everyone is so busy with their lives they don’t have time to come and see you. They can meet other friends out, but you can’t do that. If you do go out, you pay for it later. It’s as hard mentally as it is physically.”
Living with an Invisible Illness is in itself a “full-time job” Between the physical and emotional symptoms, constant doctor appointments. You may find yourself needing to cut back on hours or stop working altogether due to the demands of your condition.
This may be a necessity for your health, other people don’t always understand why you’re not working. They may have misconceptions that you’re “lazy,” “on vacation” or “so lucky!” but as those of you with chronic illness know, this couldn’t be further from the truth.
I’ve been feeling left out, alone, bored, and much more because I can’t work. I have CRPS and by having this diagnosis it’s difficult to do normal things like working.
I’m glad I found this website they understand what it’s like to have a chronic illness and not be able to work.
https://themighty.com/2017/05/not-working-illness-disability-what-its-like/
jimmylpn@gmail.com
I have recently been diagnosed with CRPS. I am on the internet trying to find any help I can to relieve this intense burning pain. It has traveled from my right knee after total knee replacement to my other limbs in just a matter of a couple of weeks. I need a neurologist who is knowledgeable about this syndrome. PT in our area already dismissed me saying they can’t help because they don’t know anything about CRPS. I’m doing all my PT at home religiously. Without God and my family and friends support I don’t know where I would be. I’m from Alabama and there is no Support groups here. Please contact me if you get this message.
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Jan, have you tried..
https://rsds.org/find-a-support-group-near-you/
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Visit the website https://internationalpain.org/support-groups/
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