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It’s Okay To Not Be Okay!

With everything going on in our world right now it’s so easy to feel the uncertainty all around us. We try to get through the day and hope for a better tomorrow, and we do it all again the next day, until we feel ourselves start breaking down and giving up. I’m here to let… Continue reading It’s Okay To Not Be Okay!

Article · Blog · Complex Regional Pain Syndrome · CRPS · Invisible Illness · legacy · Life · news · Pain · Personal · Photography · Platform · Reflex Sympathetic Dystrophy · RSD · Spooners · Website

Twelve Things People with CRPS Want You To Know About Them During the Holiday Season

Tis the season to be jolly! Or at least, that’s what I’ve heard. I love the holiday season. There are beautiful lights and decorations everywhere, there are people singing cheery songs, there are fun, mindless movie marathons on TV, there is delicious food- all of my favorite things wrapped into one season. Maybe that’s why… Continue reading Twelve Things People with CRPS Want You To Know About Them During the Holiday Season

Article · Blog · Complex Regional Pain Syndrome · CRPS · Invisible Illness · legacy · Life · Pain · Personal · Platform · Reflex Sympathetic Dystrophy · RSD · Spooners · Website

A Letter to Children Diagnosed With CRPS, From an Adult Who’s Been There

Dear child with CRPS, You are young, and this diagnosis has not come at an ideal time in your life. I mean, is there an ideal time to be diagnosed with complex regional pain syndrome (CRPS) — one of the most painful conditions known? Let me assure you though, everything is going to be OK.… Continue reading A Letter to Children Diagnosed With CRPS, From an Adult Who’s Been There

Article · Blog · Complex Regional Pain Syndrome · CRPS · Invisible Illness · Life · news · Pain · Platform · Reflex Sympathetic Dystrophy · RSD · Spooners

CRPS in Teens

CRPS – One of the more dramatic and visible forms of amplified pain is complex regional pain syndrome (CRPS) which was formerly known as reflex sympathetic dystrophy (RSD). This is a very painful condition that typically affects a hand or foot with associated signs of the autonomic dysfunction, that is, the hand or foot becomes swollen,… Continue reading CRPS in Teens