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Peace Is Possible.

“I create beautiful art, so I can look back on the life my body fell short of in such a way that it brings me peace.” Nikki Rowe .

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Blog · Complex Regional Pain Syndrome · CRPS · Invisible Illness · Life · Platform · Reflex Sympathetic Dystrophy · RSD · Spooners · Truth To Power

Coping Strategies

It can be difficult to accept that you’ve developed a chronic medical condition that keeps you from returning to activities that you once enjoyed. You may feel that it’s unfair how your life has changed. Of course you’re right. But thousands of members of the RSDSA community will tell you that you can live a… Continue reading Coping Strategies

Blog · Complex Regional Pain Syndrome · CRPS · Invisible Illness · Life · Platform · Reflex Sympathetic Dystrophy · RSD · Spooners · Truth To Power

Definition of CRPS

CRPS-I is a syndrome characterized by a continuing (spontaneous and/or evoked) regional pain that is seemingly disproportionate in time or degree to the usual course of pain after trauma or other lesion. The pain is regional (not in a specific nerve territory or dermatome) and usually has a distal predominance of abnormal sensory, motor, sudomotor,… Continue reading Definition of CRPS

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CRPS INFORMATION FOR SCHOOLS!

Here's some info on how to help your child deal with CRPS while at school. Thanks crpsnetworkaustralia for the tips! Complex Regional Pain Syndrome (CRPS) is a debilitating condition that is characterised by severe continuous pain, that may be burning, throbbing, stabbing, aching or feel like pins and needles and is considered the highest rated… Continue reading CRPS INFORMATION FOR SCHOOLS!

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Pain Makes Us Who We Are 

  Let your pain empower you, Not all of us are destined to break. And if you find yourself broken, Allow for each broken piece To faithfully make sense I would never put public speaking on my "special skills" list, but over these past years I have been called to do just that more than a number of… Continue reading Pain Makes Us Who We Are 

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Ten Steps To Overcoming Chronic Pain

YES, CRPS/RSD IS A TYPE OF CHRONIC PAIN!  Chronic pain is a serious problem but is often made worse by misinformation, negative attitudes and beliefs, outdated ideas, negative emotions. It is recognised that chronic pain is often mismanaged, not because we lack adequate treatments, but because of fear and ignorance. These steps are designed to… Continue reading Ten Steps To Overcoming Chronic Pain

Blog · Complex Regional Pain Syndrome · CRPS · Invisible Illness · legacy · Life · Personal · Platform · Reflex Sympathetic Dystrophy · RSD · Sports · Truth To Power

Pain Matters Documentary Film 

Discovery Channel Documentary "Pain Matters" Chronicles the Burdens of Living with Chronic Pain. “Pain Matters” chronicles the stories of six people with pain and their loved ones: a U.S. Navy veteran who sustained debilitating injuries while serving in Iraq, a two-time Stanley Cup-winning hockey player, a car accident survivor, and individuals with osteoarthritis, fibromyalgia and… Continue reading Pain Matters Documentary Film 

Blog · Complex Regional Pain Syndrome · CRPS · Invisible Illness · legacy · Life · Personal · Photography · photoshoot · Reflex Sympathetic Dystrophy · RSD · Truth To Power

Don’t Give Up On Me!

You deserve people who don’t give up on you, it takes strong healthy people in your life, people who don’t crumble easy to stay strong with you through this. Of course if you have CRPS, most of your fair weather friends are probably gone. I’ve found the ones still here are pretty legit at this… Continue reading Don’t Give Up On Me!

#JusticeForJoey · #LightItUpJoey · Blog · Connecticut · honor · Joey Gingerella · legacy · Life · Personal · Platform · Sports · Truth To Power

Honoring A Hero!

I can FINALLY tell the world what I’ve been working on with my Representative Chris Conley since November of last year! After the tragic lose of our friend and family member Joey Gingerella, I reached out to our high school Fitch High to see if they could have a plaque or something that could be… Continue reading Honoring A Hero!

Blog · Complex Regional Pain Syndrome · CRPS · Invisible Illness · legacy · Life · Personal · Platform · Reflex Sympathetic Dystrophy · RSD · Truth To Power

5 Do’s and Don’ts When It Comes to People with CRPS

So often we find ourselves in situations where people are trying their best to help us when in reality they very well may be hurting us. I can see how being a loved one of someone with CRPS can be challenging in more ways than one. You may find yourself not knowing what we want… Continue reading 5 Do’s and Don’ts When It Comes to People with CRPS