This is what a day in my life used be like for 6 years! But after countless physical therapy sessions, doctors appointments, therapy sessions with and without my mom, and learning to accept that this is my new life, my new normal.. I’ve finally reached the point in my life that I can actually be… Continue reading What a Day With Complex Regional Pain Syndrome Feels Like…
CRPS— One of the more dramatic and visible forms of amplified pain is complex regional pain syndrome (CRPS) which was formerly known as reflex sympathetic dystrophy (RSD). This is a very painful condition that typically affects a hand or foot with associated signs of the autonomic dysfunction, that is, the hand or foot becomes swollen, cold… Continue reading CRPS in Teens
Dear child with CRPS, You are young, and this diagnosis has not come at an ideal time in your life. I mean, is there an ideal time to be diagnosed with complex regional pain syndrome (CRPS) — one of the most painful conditions known? Let me assure you though, everything is going to be OK. You will… Continue reading A Letter to Children Diagnosed With CRPS, From an Adult That’s Been There.
Last year I did an online article for Practical Pain Management about my life with CRPS. Here is just a piece of the article.. For Margaret, now 24, the terrible burning sensation that heralded the onset of CRPS began only a few days after the surgery. She’d expected some discomfort. Because bunions run in her… Continue reading Living With Burning Pain: One Patient’s CRPS Story.
I have been trying to find the right words to describe to my family members and friends for almost 4 years on what it's like to be living with CRPS/RSD. Some people get it.. to a degree and some just can't separate that I look "fine" or "normal". To them it's hard that they don't… Continue reading Letter To Families and Friends of CRPS/RSD Patients.