Blog · Complex Regional Pain Syndrome · CRPS · Invisible Illness · legacy · Life · Pain · Personal · Platform · Reflex Sympathetic Dystrophy · RSD · Spooners

A Letter to Children Diagnosed With CRPS, From an Adult That’s Been There.

Dear child with CRPS, You are young, and this diagnosis has not come at an ideal time in your life. I mean, is there an ideal time to be diagnosed with complex regional pain syndrome (CRPS) — one of the most painful conditions known? Let me assure you though, everything is going to be OK. You will… Continue reading A Letter to Children Diagnosed With CRPS, From an Adult That’s Been There.

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More Than Statistics.

A few days ago I learned that my dad has COVID 19. My dad has done everything that he can to stay safe from this virus but the thing is, my dad is one of the countless doctors and nurses that continue to put themselves on the front line for others everyday. My dad is… Continue reading More Than Statistics.

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Forever Our Hero

Do you ever wonder how long it takes to change your life? What measure of time is enough to be life altering? Is it four years like high school? One year? Can your life change in a month, or a week, or a single day? We’re always in a hurry to grow up, to go… Continue reading Forever Our Hero

Blog · Complex Regional Pain Syndrome · CRPS · honor · Invisible Illness · legacy · Life · Personal · Photography · photoshoot · Platform · Reflex Sympathetic Dystrophy · RSD · Spooners · Truth To Power

Living With Burning Pain: One Patient’s CRPS Story.

Last year I did an online article for Practical Pain Management about my life with CRPS. Here is just a piece of the article.. For Margaret, now 24, the terrible burning sensation that heralded the onset of CRPS began only a few days after the surgery.  She’d expected some discomfort. Because bunions run in her… Continue reading Living With Burning Pain: One Patient’s CRPS Story.

Blog · Complex Regional Pain Syndrome · CRPS · Invisible Illness · legacy · Life · Personal · Platform · Reflex Sympathetic Dystrophy · RSD · Spooners · Truth To Power

Letter To Families and Friends of CRPS/RSD Patients.

I have been trying to find the right words to describe to my family members and friends for almost 4 years on what it's like to be living with CRPS/RSD. Some people get it.. to a degree and some just can't separate that I look "fine" or "normal". To them it's hard that they don't… Continue reading Letter To Families and Friends of CRPS/RSD Patients.