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Twelve Things People with CRPS Want You To Know About Them During the Holiday Season

Tis the season to be jolly! Or at least, that’s what I’ve heard. I love the holiday season. There are beautiful lights and decorations everywhere, there are people singing cheery songs, there are fun, mindless movie marathons on TV, there is delicious food- all of my favorite things wrapped into one season. Maybe that’s why… Continue reading Twelve Things People with CRPS Want You To Know About Them During the Holiday Season

Article · Blog · Complex Regional Pain Syndrome · CRPS · Invisible Illness · legacy · Life · Pain · Personal · Platform · Reflex Sympathetic Dystrophy · RSD · Spooners · Website

A Letter to Children Diagnosed With CRPS, From an Adult Who’s Been There

Dear child with CRPS, You are young, and this diagnosis has not come at an ideal time in your life. I mean, is there an ideal time to be diagnosed with complex regional pain syndrome (CRPS) — one of the most painful conditions known? Let me assure you though, everything is going to be OK.… Continue reading A Letter to Children Diagnosed With CRPS, From an Adult Who’s Been There

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Forever Our Hero

Do you ever wonder how long it takes to change your life? What measure of time is enough to be life altering? Is it four years like high school? One year? Can your life change in a month, or a week, or a single day? We’re always in a hurry to grow up, to go… Continue reading Forever Our Hero

Article · Blog · Complex Regional Pain Syndrome · CRPS · Invisible Illness · legacy · Life · news · Pain · Personal · Platform · Reflex Sympathetic Dystrophy · RSD · Spooners · Website

What a Day With Complex Regional Pain Syndrome Feels Like

PERFECT WAY TO DESCRIBE WHAT LIFE IS LIKE WITH CRPS! Can a person imagine something they have never seen or experienced? Does imagination have limitations? No matter how hard I try to explain the sound of the crashing waves, the feeling of the sand in my toes, and the beautiful horizon, to someone who has… Continue reading What a Day With Complex Regional Pain Syndrome Feels Like