Ache my bones, flame my muscles, tingle my nerves, but you will never taint my beautiful mind & I will overcome this condition with the belief that I already have. - CRPS AWARENESS - Nikki Rowe
Everyday is CRPS day for me. Making my way through this mess of pain.
It can be difficult to accept that you’ve developed a chronic medical condition that keeps you from returning to activities that you once enjoyed. You may feel that it’s unfair how your life has changed. Of course you’re right. But thousands of members of the RSDSA community will tell you that you can live a… Continue reading Coping Strategies
CRPS-I is a syndrome characterized by a continuing (spontaneous and/or evoked) regional pain that is seemingly disproportionate in time or degree to the usual course of pain after trauma or other lesion. The pain is regional (not in a specific nerve territory or dermatome) and usually has a distal predominance of abnormal sensory, motor, sudomotor,… Continue reading Definition of CRPS
Here's some info on how to help your child deal with CRPS while at school. Thanks crpsnetworkaustralia for the tips! Complex Regional Pain Syndrome (CRPS) is a debilitating condition that is characterised by severe continuous pain, that may be burning, throbbing, stabbing, aching or feel like pins and needles and is considered the highest rated… Continue reading CRPS INFORMATION FOR SCHOOLS!
I tell myself I’ll make it, rebel to the end. Try to look away from the colors turning in my skin, won’t let this bring me down and diminish me from within. I try to bring my soul fire out and not let it take me through my skin. This pain can try to bury… Continue reading Rebel To The End!
What is beauty really? To me it has nothing to do with the way one looks, it’s what lies beneath the surface. It’s the way you carry yourself when in the midst of destruction. Its the way you love back in the midst of beyond crippling pain. It’s the way you love the ones who… Continue reading Seeing The Beauty While Living CRPS!
CRPS/RSD is called an "invisible disease" because the signs and symptoms are often just a pain that lasts longer than the initial injury and is more intense and continuous. It makes for a unique situation that places a burden of proof on the patient and often doctors or others who have not heard about CRPS/RSD tell… Continue reading Uncovering “Invisible Diseases”
The mission of the National Institute of Neurological Disorders and Stroke (NINDS) is to seek fundamental knowledge about the brain and nervous system and to use that knowledge to reduce the burden of neurological disease. The NINDS is part of the National Institutes of Health (NIH), the leading supporter of biomedical research in the world.… Continue reading What research is currently being done on CRPS?
Shakespeare once said "To sleep perchance to dream." Unfortunately, those of us with CRPS/RSD don’t see sleep that often and we rarely dream. The question of sleep is one we often bring up.. How did you sleep, did you sleep at all, how long did you sleep.. But no one ever seems to ask us… Continue reading To Sleep, Is To Dream