“I create beautiful art, so I can look back on the life my body fell short of in such a way that it brings me peace.” Nikki Rowe .
Let your pain empower you, Not all of us are destined to break. And if you find yourself broken, Allow for each broken piece To faithfully make sense I would never put public speaking on my "special skills" list, but over these past years I have been called to do just that more than a number of… Continue reading Pain Makes Us Who We Are
YES, CRPS/RSD IS A TYPE OF CHRONIC PAIN! Chronic pain is a serious problem but is often made worse by misinformation, negative attitudes and beliefs, outdated ideas, negative emotions. It is recognised that chronic pain is often mismanaged, not because we lack adequate treatments, but because of fear and ignorance. These steps are designed to… Continue reading Ten Steps To Overcoming Chronic Pain
Discovery Channel Documentary "Pain Matters" Chronicles the Burdens of Living with Chronic Pain. “Pain Matters” chronicles the stories of six people with pain and their loved ones: a U.S. Navy veteran who sustained debilitating injuries while serving in Iraq, a two-time Stanley Cup-winning hockey player, a car accident survivor, and individuals with osteoarthritis, fibromyalgia and… Continue reading Pain Matters Documentary Film
So often we find ourselves in situations where people are trying their best to help us when in reality they very well may be hurting us. I can see how being a loved one of someone with CRPS can be challenging in more ways than one. You may find yourself not knowing what we want… Continue reading 5 Do’s and Don’ts When It Comes to People with CRPS
“I am 24 and performed gymnastics practically my whole life. I was recently diagnosed with Complex Regional Pain Syndrome (CRPS), a rare neurological disorder. It began after I had suffered trauma to my right foot when a horse stepped on it. A few months later I had surgery on the same foot to correct a… Continue reading Move Forward PT
Chronic Pain: A Burden Often Shared By JANE E. BRODY Chronic pain is a family problem. When people experience unrelenting pain, everyone they live with and love is likely to suffer. The frustration, anxiety, stress and depression that often go with chronic pain can also afflict family members and friends who feel helpless to provide… Continue reading Chronic Pain: A Burden Often Shared
I have been following this AMAZING CRPS/RSD Warrior on Instagram.. ALL her posts are about the fight and struggle that we all deal with by living with this cruel diagnosis! I'll be posting her photos/art work on here because her words are on point and hits deep down! Here's the first post- • “If I… Continue reading Free from the shackles of chronic pain.
There are a lot of ways to be lost at sea. It’s not the same as being abandoned or stranded. Those thing happen beyond our control sometimes, we just take a wrong turn too close to the tide. The waters rise and sweep us away. We fight the currents for a way back to dry… Continue reading Lost At Sea
Dear World, My name is Margaret Twitty and I am a 27 year old suffering with Complex Regional Pain Syndrome/ Reflex Sympathetic Dystrophy also called (CRPS/RSD). You may know me personally or you may not, but who I am is not really important, only the fact that I live in chronic pain. Having chronic pain… Continue reading A Letter To The World