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A Letter To The World 

Dear World, My name is Margaret Twitty and I am a 27 year old suffering with Complex Regional Pain Syndrome/ Reflex Sympathetic Dystrophy also called (CRPS/RSD).  You may know me personally or you may not, but who I am is not really important, only the fact that I live in chronic pain.  Having chronic pain… Continue reading A Letter To The World 

Blog · Complex Regional Pain Syndrome · CRPS · Invisible Illness · legacy · Life · Personal · Platform · Reflex Sympathetic Dystrophy · RSD · Truth To Power

Trying To Understand 

Ten Tips For Communicating With A Person Suffering From Chronic Pain by Mark Grant MA People with chronic pain communicate differently to well people.  Tired, irritable and withdrawn, they are often reluctant or unable to talk about their feelings. Or they may talk in a kind of 'code' and tell you they feel fine when… Continue reading Trying To Understand 

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Brooklyn Bedding 3 Years Later And Counting!

After almost 3 years I’m still in love with my Brooklyn Bedding as I was day I got it! I’ve gone through so many mattresses in my life.. I always think I’ve FINALLY found the PERFECT one but then something happens. I happened to have come across brooklyn bedding thanks to my cousin.. some of… Continue reading Brooklyn Bedding 3 Years Later And Counting!

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Not Being Able To Work Because Of Invisible Illness.

“No one realizes that a job does more for you than just pay your bills. It is part of what gives you self-esteem. When you can’t work anymore, it is very hard to see yourself as worth something to people. You feel isolated because everyone is so busy with their lives they don’t have time… Continue reading Not Being Able To Work Because Of Invisible Illness.

Blog · Complex Regional Pain Syndrome · CRPS · Invisible Illness · legacy · Life · Personal · Platform · Reflex Sympathetic Dystrophy · RSD · Truth To Power

CRPS FACTS!

I have been living with CRPS for about 4 years now. CRPS is the most painful disease known to mankind. More painful than unprepared child birth, stage 4 cancer, and even amputation according to the McGill Pain Index. The pain never stops and when it flares up I can be in bed for days or… Continue reading CRPS FACTS!