Blog · Complex Regional Pain Syndrome · CRPS · Invisible Illness · legacy · Life · Personal · Platform · Reflex Sympathetic Dystrophy · RSD · Truth To Power

Trying To Understand 

Ten Tips For Communicating With A Person Suffering From Chronic Pain by Mark Grant MA People with chronic pain communicate differently to well people.  Tired, irritable and withdrawn, they are often reluctant or unable to talk about their feelings. Or they may talk in a kind of 'code' and tell you they feel fine when… Continue reading Trying To Understand 

Blog · Complex Regional Pain Syndrome · CRPS · Invisible Illness · legacy · Life · Personal · Platform · Reflex Sympathetic Dystrophy · RSD · Truth To Power

Uncovering “Invisible Diseases”

CRPS/RSD is called an "invisible disease" because the signs and symptoms are often just a pain that lasts longer than the initial injury and is more intense and continuous. It makes for a unique situation that places a burden of proof on the patient and often doctors or others who have not heard about CRPS/RSD tell… Continue reading Uncovering “Invisible Diseases”

Blog · Complex Regional Pain Syndrome · CRPS · Invisible Illness · legacy · Life · Platform · Reflex Sympathetic Dystrophy · RSD · Truth To Power

What research is currently being done on CRPS?

The mission of the National Institute of Neurological Disorders and Stroke (NINDS) is to seek fundamental knowledge about the brain and nervous system and to use that knowledge to reduce the burden of neurological disease.  The NINDS is part of the National Institutes of Health (NIH), the leading supporter of biomedical research in the world.… Continue reading What research is currently being done on CRPS?

Blog · Complex Regional Pain Syndrome · CRPS · Invisible Illness · legacy · Life · Personal · Platform · Reflex Sympathetic Dystrophy · RSD · Truth To Power

To Sleep, Is To Dream 

Shakespeare once said "To sleep perchance to dream."  Unfortunately, those of us with CRPS/RSD don’t see sleep that often and we rarely dream.   The question of sleep is one we often bring up.. How did you sleep, did you sleep at all, how long did you sleep.. But no one ever seems to ask us… Continue reading To Sleep, Is To Dream 

Blog · Connecticut · Groton Life · legacy · Life · Personal · Platform · Small Town Life

Looking Towards The Future

I’ve lived in Groton, Connecticut for the past 23 years. I moved here when I was 4 safe to say I was pretty much raised here. I thought I knew and saw everything that my small town had to offer. I knew the streets, the buildings, the people, the changing of the crazy seasons that… Continue reading Looking Towards The Future