“I create beautiful art, so I can look back on the life my body fell short of in such a way that it brings me peace.” Nikki Rowe .
Ache my bones, flame my muscles, tingle my nerves, but you will never taint my beautiful mind & I will overcome this condition with the belief that I already have. - CRPS AWARENESS - Nikki Rowe
Everyday is CRPS day for me. Making my way through this mess of pain.
I tell myself I’ll make it, rebel to the end. Try to look away from the colors turning in my skin, won’t let this bring me down and diminish me from within. I try to bring my soul fire out and not let it take me through my skin. This pain can try to bury… Continue reading Rebel To The End!
What is beauty really? To me it has nothing to do with the way one looks, it’s what lies beneath the surface. It’s the way you carry yourself when in the midst of destruction. Its the way you love back in the midst of beyond crippling pain. It’s the way you love the ones who… Continue reading Seeing The Beauty While Living CRPS!
“The real heroes are those who rebuild their lives using adversity as a stepping stone to greatness in the midst of the chaos life has thrown at them.” Nikki Rowe
You deserve people who don’t give up on you, it takes strong healthy people in your life, people who don’t crumble easy to stay strong with you through this. Of course if you have CRPS, most of your fair weather friends are probably gone. I’ve found the ones still here are pretty legit at this… Continue reading Don’t Give Up On Me!
"We’re big believers in Margaret Twitty’s favorite saying,"Know The Person Not The Disability.” But sometimes, learning more about a disability is an important way to understand what others around us are going through. With that in mind, we asked Margaret Twitty, founder of the 2/17 clothing line and Complex Regional Pain Syndrome sufferer to share… Continue reading She’s Fit To Lead Article
“I am 24 and performed gymnastics practically my whole life. I was recently diagnosed with Complex Regional Pain Syndrome (CRPS), a rare neurological disorder. It began after I had suffered trauma to my right foot when a horse stepped on it. A few months later I had surgery on the same foot to correct a… Continue reading Move Forward PT
CRPS to me can feel like this endless long hallway of pain. I know the end of this pain has to be there at the end of this, but it goes on and on and I can’t ever reach it. I still hold hope somewhere deep in this heart. 🧡🧡🧡