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Definition of CRPS

CRPS-I is a syndrome characterized by a continuing (spontaneous and/or evoked) regional pain that is seemingly disproportionate in time or degree to the usual course of pain after trauma or other lesion. The pain is regional (not in a specific nerve territory or dermatome) and usually has a distal predominance of abnormal sensory, motor, sudomotor,… Continue reading Definition of CRPS

Blog · Complex Regional Pain Syndrome · CRPS · Invisible Illness · legacy · Life · Personal · Platform · Reflex Sympathetic Dystrophy · RSD · Truth To Power

Uncovering “Invisible Diseases”

CRPS/RSD is called an "invisible disease" because the signs and symptoms are often just a pain that lasts longer than the initial injury and is more intense and continuous. It makes for a unique situation that places a burden of proof on the patient and often doctors or others who have not heard about CRPS/RSD tell… Continue reading Uncovering “Invisible Diseases”

Blog · Complex Regional Pain Syndrome · CRPS · Invisible Illness · legacy · Life · Platform · Reflex Sympathetic Dystrophy · RSD · Truth To Power

What research is currently being done on CRPS?

The mission of the National Institute of Neurological Disorders and Stroke (NINDS) is to seek fundamental knowledge about the brain and nervous system and to use that knowledge to reduce the burden of neurological disease.  The NINDS is part of the National Institutes of Health (NIH), the leading supporter of biomedical research in the world.… Continue reading What research is currently being done on CRPS?

Blog · Complex Regional Pain Syndrome · CRPS · Invisible Illness · legacy · Life · Personal · Platform · Reflex Sympathetic Dystrophy · RSD · Truth To Power

To Sleep, Is To Dream 

Shakespeare once said "To sleep perchance to dream."  Unfortunately, those of us with CRPS/RSD don’t see sleep that often and we rarely dream.   The question of sleep is one we often bring up.. How did you sleep, did you sleep at all, how long did you sleep.. But no one ever seems to ask us… Continue reading To Sleep, Is To Dream 

Blog · Complex Regional Pain Syndrome · CRPS · Invisible Illness · legacy · Life · Personal · Platform · Reflex Sympathetic Dystrophy · RSD · Truth To Power

Support With CRPS

Lately I've been getting several emails from fellow CRPS warriors on how to deal with this diagnosis. I've found a great website that can help you guys out..It's called IPain and they have incredible service and support internationally! I hope this website gives you guys the help, info, and support that we're all looking for!