Dear child with CRPS, You are young, and this diagnosis has not come at an ideal time in your life. I mean, is there an ideal time to be diagnosed with complex regional pain syndrome (CRPS) — one of the most painful conditions known? Let me assure you though, everything is going to be OK. You will… Continue reading A Letter to Children Diagnosed With CRPS, From an Adult That’s Been There.
Tag: Rare Disease
Natural Ways to Help Nerve Pain
If you experience nerve pain, then you may know how debilitating this pain can be. From a stabbing pain that may hit you in the middle of the night to uncontrolled nerve pain that is strong and persistent; you would go to any lengths possible to find a way to help alleviate or control this pain. If you… Continue reading Natural Ways to Help Nerve Pain
Living With Burning Pain: One Patient’s CRPS Story.
Last year I did an online article for Practical Pain Management about my life with CRPS. Here is just a piece of the article.. For Margaret, now 24, the terrible burning sensation that heralded the onset of CRPS began only a few days after the surgery. She’d expected some discomfort. Because bunions run in her… Continue reading Living With Burning Pain: One Patient’s CRPS Story.
Paula Abdul: Putting the Spotlight on Rare Disease
SMILING THROUGH THE PAIN: Paula Abdul maintains a positive attitude throughout her battle with chronic pain caused by RSD. Pop icon, Paula Abdul, opens up about her daily struggle with Reflex Sympathetic Dystrophy. Mediaplanet: What is RSD and how does it manifest itself? How would you describe RSD? Paula Abdul: RSD stands for “Reflex Sympathetic Dystrophy.” It’s… Continue reading Paula Abdul: Putting the Spotlight on Rare Disease
My Journey With CRPS/RSD 