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I Will Overcome This!

Ache my bones, flame my muscles, tingle my nerves, but you will never taint my beautiful mind & I will overcome this condition with the belief that I already have. - CRPS AWARENESS - Nikki Rowe

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#JusticeForJoey · #LightItUpJoey · Blog · Connecticut · honor · Joey Gingerella · legacy · Life · Personal · Platform · Sports · Truth To Power

Honoring A Hero!

I can FINALLY tell the world what I’ve been working on with my Representative Chris Conley since November of last year! After the tragic lose of our friend and family member Joey Gingerella, I reached out to our high school Fitch High to see if they could have a plaque or something that could be… Continue reading Honoring A Hero!

Blog · Complex Regional Pain Syndrome · CRPS · Invisible Illness · legacy · Life · Personal · Platform · Reflex Sympathetic Dystrophy · RSD · Truth To Power

Chronic Pain: A Burden Often Shared

Chronic Pain: A Burden Often Shared By JANE E. BRODY Chronic pain is a family problem. When people experience unrelenting pain, everyone they live with and love is likely to suffer. The frustration, anxiety, stress and depression that often go with chronic pain can also afflict family members and friends who feel helpless to provide… Continue reading Chronic Pain: A Burden Often Shared

Blog · Complex Regional Pain Syndrome · CRPS · Invisible Illness · legacy · Life · Personal · Platform · Reflex Sympathetic Dystrophy · RSD · Truth To Power

Trying To Understand 

Ten Tips For Communicating With A Person Suffering From Chronic Pain by Mark Grant MA People with chronic pain communicate differently to well people.  Tired, irritable and withdrawn, they are often reluctant or unable to talk about their feelings. Or they may talk in a kind of 'code' and tell you they feel fine when… Continue reading Trying To Understand 

Blog · Connecticut · Groton Life · legacy · Life · Personal · Platform · Small Town Life

Looking Towards The Future

I’ve lived in Groton, Connecticut for the past 23 years. I moved here when I was 4 safe to say I was pretty much raised here. I thought I knew and saw everything that my small town had to offer. I knew the streets, the buildings, the people, the changing of the crazy seasons that… Continue reading Looking Towards The Future

Blog · Complex Regional Pain Syndrome · CRPS · Invisible Illness · legacy · Life · Personal · Platform · Reflex Sympathetic Dystrophy · RSD

Oh, What Now!

Around 1pm on Friday I fell off a ladder that I was using to paint my room and landed on my back, my right foot (my bad foot), my side ribs, my left shoulder, my elbow, my arm, and my head. I got several X-Rays done and a CAT Scan to make sure that I… Continue reading Oh, What Now!

Blog · Complex Regional Pain Syndrome · CRPS · Invisible Illness · legacy · Life · Personal · Photography · Platform · Reflex Sympathetic Dystrophy · RSD · Sports

Brooklyn Bedding 3 Years Later And Counting!

After almost 3 years I’m still in love with my Brooklyn Bedding as I was day I got it! I’ve gone through so many mattresses in my life.. I always think I’ve FINALLY found the PERFECT one but then something happens. I happened to have come across brooklyn bedding thanks to my cousin.. some of… Continue reading Brooklyn Bedding 3 Years Later And Counting!

Blog · Complex Regional Pain Syndrome · CRPS · Invisible Illness · legacy · Life · Personal · Platform · Reflex Sympathetic Dystrophy · RSD · Truth To Power

How It Happened!

Recently a lot of people have been asking me what is CRPS/RSD and how did I get it. I never realized that I didn't share how all this came to be. So without further ado here is my story! ------ A horse and having a bunion surgery! I was stepped on a 900lb horse in… Continue reading How It Happened!

Blog · Complex Regional Pain Syndrome · CRPS · Fashion · Guest Post · Invisible Illness · legacy · Life · Personal · Photography · Platform · Reflex Sympathetic Dystrophy · RSD

The LiftUp Lifestyle

What is "The LiftUp Lifestyle" The LiftUp Lifestyle is a community that helps you Connect, Encourage, and Support one another. Their Value is- "To put meaning behind everything that you do. To look at the people to the right of you and to the left of you with compassion. To see others as an extension of… Continue reading The LiftUp Lifestyle

Blog · Complex Regional Pain Syndrome · CRPS · Fashion · I Am A Voter · Invisible Illness · legacy · Life · Personal · Platform · Reflex Sympathetic Dystrophy · RSD · Truth To Power · Vote

WHY I VOTED

#IAMAVOTER! It has taken me 26 years to realize that my voice does matters, that my vote does matters! I was one of those people who never fully understood the way government works or how it applies to me. It took me being diagnosed with CRPS a very rare, very painful chronic diagnosis that I… Continue reading WHY I VOTED