Art · Blog · Complex Regional Pain Syndrome · CRPS · Invisible Illness · legacy · Life · Personal · Photography · photoshoot · Platform · quote · Reflex Sympathetic Dystrophy · RSD · Spooners · Truth To Power

U Matter!

Before CRPS I had everything or at least what I needed, but privately I was absolutely broken inside. I kept it all together enough to where I would never let anyone else down but I kept it too much together to where I eventually let myself down. Over the years I've learned that it's not… Continue reading U Matter!

Blog · Complex Regional Pain Syndrome · CRPS · Invisible Illness · legacy · Life · Personal · Photography · photoshoot · Platform · quote · Reflex Sympathetic Dystrophy · RSD · Spooners · Truth To Power

The Human Touch

"Human touch. Our first form of communication. Safety, security, comfort, all in the gentle caress of a finger. Or the brush of lips on a soft cheek. It connects us when we’re happy, bolsters us in times of fear, excites us in times of passion and love. We need that touch from the one we… Continue reading The Human Touch

Art · Blog · Complex Regional Pain Syndrome · CRPS · Invisible Illness · legacy · Life · Personal · Photography · photoshoot · Platform · quote · Reflex Sympathetic Dystrophy · RSD · Spooners · Truth To Power

Who Are You Going To Be?

Only you get to decide who you are going to be. . . “The girl was a gypsy before an illness took control of her legs, now she watches in awe the world pass by whilst stillness teaches her about inner strength.” -Nikki Rowe . . CRPS AWARENESS

Blog · Complex Regional Pain Syndrome · CRPS · honor · Invisible Illness · legacy · Life · Personal · Photography · photoshoot · Platform · Reflex Sympathetic Dystrophy · RSD · Spooners · Truth To Power

Living With Burning Pain: One Patient’s CRPS Story.

Last year I did an online article for Practical Pain Management about my life with CRPS. Here is just a piece of the article.. For Margaret, now 24, the terrible burning sensation that heralded the onset of CRPS began only a few days after the surgery.  She’d expected some discomfort. Because bunions run in her… Continue reading Living With Burning Pain: One Patient’s CRPS Story.

Blog · Complex Regional Pain Syndrome · CRPS · Invisible Illness · legacy · Life · Personal · Platform · Reflex Sympathetic Dystrophy · RSD · Spooners · Truth To Power

Letter To Families and Friends of CRPS/RSD Patients.

I have been trying to find the right words to describe to my family members and friends for almost 4 years on what it's like to be living with CRPS/RSD. Some people get it.. to a degree and some just can't separate that I look "fine" or "normal". To them it's hard that they don't… Continue reading Letter To Families and Friends of CRPS/RSD Patients.