#JusticeForJoey · #LightItUpJoey · Blog · Connecticut · honor · Joey Gingerella · legacy · Life · Personal · Platform · Sports · Truth To Power

Honoring A Hero!

I can FINALLY tell the world what I’ve been working on with my Representative Chris Conley since November of last year! After the tragic lose of our friend and family member Joey Gingerella, I reached out to our high school Fitch High to see if they could have a plaque or something that could be… Continue reading Honoring A Hero!

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Blog · Clothing Line · Complex Regional Pain Syndrome · CRPS · Fashion · honor · Invisible Illness · legacy · Life · Personal · Photography · photoshoot · Platform · Reflex Sympathetic Dystrophy · RSD · Truth To Power

She’s Fit To Lead Article 

"We’re big believers in Margaret Twitty’s favorite saying,"Know The Person Not The Disability.” But sometimes, learning more about a disability is an important way to understand what others around us are going through. With that in mind, we asked Margaret Twitty, founder of the 2/17 clothing line and Complex Regional Pain Syndrome sufferer to share… Continue reading She’s Fit To Lead Article 

Blog · Complex Regional Pain Syndrome · CRPS · Invisible Illness · legacy · Life · Personal · Platform · Reflex Sympathetic Dystrophy · RSD · Truth To Power

5 Do’s and Don’ts When It Comes to People with CRPS

So often we find ourselves in situations where people are trying their best to help us when in reality they very well may be hurting us. I can see how being a loved one of someone with CRPS can be challenging in more ways than one. You may find yourself not knowing what we want… Continue reading 5 Do’s and Don’ts When It Comes to People with CRPS

Blog · Complex Regional Pain Syndrome · CRPS · honor · Invisible Illness · legacy · Life · Personal · Photography · photoshoot · Platform · Reflex Sympathetic Dystrophy · RSD · Truth To Power

Move Forward PT 

“I am 24 and performed gymnastics practically my whole life. I was recently diagnosed with Complex Regional Pain Syndrome (CRPS), a rare neurological disorder. It began after I had suffered trauma to my right foot when a horse stepped on it. A few months later I had surgery on the same foot to correct a… Continue reading Move Forward PT 

Blog · Complex Regional Pain Syndrome · CRPS · Invisible Illness · legacy · Life · Personal · Platform · Reflex Sympathetic Dystrophy · RSD · Truth To Power

Chronic Pain: A Burden Often Shared

Chronic Pain: A Burden Often Shared By JANE E. BRODY Chronic pain is a family problem. When people experience unrelenting pain, everyone they live with and love is likely to suffer. The frustration, anxiety, stress and depression that often go with chronic pain can also afflict family members and friends who feel helpless to provide… Continue reading Chronic Pain: A Burden Often Shared

Blog · Complex Regional Pain Syndrome · CRPS · Invisible Illness · legacy · Life · Personal · Photography · Platform · Reflex Sympathetic Dystrophy · RSD · Truth To Power

There is Still Hope

CRPS to me can feel like this endless long hallway of pain. I know the end of this pain has to be there at the end of this, but it goes on and on and I can’t ever reach it. I still hold hope somewhere deep in this heart. 🧡🧡🧡

Blog · Complex Regional Pain Syndrome · CRPS · Invisible Illness · legacy · Life · Personal · Photography · Platform · Reflex Sympathetic Dystrophy · RSD · Truth To Power

Free from the shackles of chronic pain.

I have been following this AMAZING CRPS/RSD Warrior on Instagram.. ALL her posts are about the fight and struggle that we all deal with by living with this cruel diagnosis! I'll be posting her photos/art work on here because her words are on point and hits deep down! Here's the first post- • “If I… Continue reading Free from the shackles of chronic pain.

Blog · Complex Regional Pain Syndrome · CRPS · Groton Life · Invisible Illness · legacy · Life · Personal · Photography · photoshoot · Platform · Reflex Sympathetic Dystrophy · RSD · Small Town Life · Travel · Truth To Power

Lost At Sea

There are a lot of ways to be lost at sea. It’s not the same as being abandoned or stranded. Those thing happen beyond our control sometimes, we just take a wrong turn too close to the tide. The waters rise and sweep us away. We fight the currents for a way back to dry… Continue reading Lost At Sea

Blog · Clothing Line · Complex Regional Pain Syndrome · CRPS · Fashion · honor · Invisible Illness · legacy · Life · Personal · Platform · Reflex Sympathetic Dystrophy · RSD · Truth To Power

A Letter To The World 

Dear World, My name is Margaret Twitty and I am a 27 year old suffering with Complex Regional Pain Syndrome/ Reflex Sympathetic Dystrophy also called (CRPS/RSD).  You may know me personally or you may not, but who I am is not really important, only the fact that I live in chronic pain.  Having chronic pain… Continue reading A Letter To The World 

Blog · Complex Regional Pain Syndrome · CRPS · Invisible Illness · legacy · Life · Personal · Platform · Reflex Sympathetic Dystrophy · RSD · Truth To Power

Trying To Understand 

Ten Tips For Communicating With A Person Suffering From Chronic Pain by Mark Grant MA People with chronic pain communicate differently to well people.  Tired, irritable and withdrawn, they are often reluctant or unable to talk about their feelings. Or they may talk in a kind of 'code' and tell you they feel fine when… Continue reading Trying To Understand