Dear child with CRPS, You are young, and this diagnosis has not come at an ideal time in your life. I mean, is there an ideal time to be diagnosed with complex regional pain syndrome (CRPS) — one of the most painful conditions known? Let me assure you though, everything is going to be OK. You will… Continue reading A Letter to Children Diagnosed With CRPS, From an Adult That’s Been There.
Category: legacy
Letter To Families and Friends of CRPS/RSD Patients.
I have been trying to find the right words to describe to my family members and friends for almost 4 years on what it's like to be living with CRPS/RSD. Some people get it.. to a degree and some just can't separate that I look "fine" or "normal". To them it's hard that they don't… Continue reading Letter To Families and Friends of CRPS/RSD Patients.
Pain Makes Us Who We Are
Let your pain empower you, Not all of us are destined to break. And if you find yourself broken, Allow for each broken piece To faithfully make sense I would never put public speaking on my "special skills" list, but over these past years I have been called to do just that more than a number of… Continue reading Pain Makes Us Who We Are
Ten Steps To Overcoming Chronic Pain
YES, CRPS/RSD IS A TYPE OF CHRONIC PAIN! Chronic pain is a serious problem but is often made worse by misinformation, negative attitudes and beliefs, outdated ideas, negative emotions. It is recognised that chronic pain is often mismanaged, not because we lack adequate treatments, but because of fear and ignorance. These steps are designed to… Continue reading Ten Steps To Overcoming Chronic Pain
5 Do’s and Don’ts When It Comes to People with CRPS
So often we find ourselves in situations where people are trying their best to help us when in reality they very well may be hurting us. I can see how being a loved one of someone with CRPS can be challenging in more ways than one. You may find yourself not knowing what we want… Continue reading 5 Do’s and Don’ts When It Comes to People with CRPS
My Journey With CRPS/RSD 