Blog · Complex Regional Pain Syndrome · CRPS · Invisible Illness · legacy · Life · Personal · Platform · Reflex Sympathetic Dystrophy · RSD · Truth To Power

Chronic Pain: A Burden Often Shared

Chronic Pain: A Burden Often Shared By JANE E. BRODY Chronic pain is a family problem. When people experience unrelenting pain, everyone they live with and love is likely to suffer. The frustration, anxiety, stress and depression that often go with chronic pain can also afflict family members and friends who feel helpless to provide… Continue reading Chronic Pain: A Burden Often Shared

Blog · Clothing Line · Complex Regional Pain Syndrome · CRPS · Fashion · honor · Invisible Illness · legacy · Life · Personal · Platform · Reflex Sympathetic Dystrophy · RSD · Truth To Power

A Letter To The World 

Dear World, My name is Margaret Twitty and I am a 27 year old suffering with Complex Regional Pain Syndrome/ Reflex Sympathetic Dystrophy also called (CRPS/RSD).  You may know me personally or you may not, but who I am is not really important, only the fact that I live in chronic pain.  Having chronic pain… Continue reading A Letter To The World 

Blog · Complex Regional Pain Syndrome · CRPS · Invisible Illness · legacy · Life · Personal · Platform · Reflex Sympathetic Dystrophy · RSD · Truth To Power

Trying To Understand 

Ten Tips For Communicating With A Person Suffering From Chronic Pain by Mark Grant MA People with chronic pain communicate differently to well people.  Tired, irritable and withdrawn, they are often reluctant or unable to talk about their feelings. Or they may talk in a kind of 'code' and tell you they feel fine when… Continue reading Trying To Understand 

Blog · Complex Regional Pain Syndrome · CRPS · Invisible Illness · legacy · Life · Personal · Platform · Reflex Sympathetic Dystrophy · RSD · Truth To Power

Uncovering “Invisible Diseases”

CRPS/RSD is called an "invisible disease" because the signs and symptoms are often just a pain that lasts longer than the initial injury and is more intense and continuous. It makes for a unique situation that places a burden of proof on the patient and often doctors or others who have not heard about CRPS/RSD tell… Continue reading Uncovering “Invisible Diseases”

Blog · Complex Regional Pain Syndrome · CRPS · honor · Invisible Illness · legacy · Life · Personal · Platform · Reflex Sympathetic Dystrophy · RSD · Truth To Power

How Do You Feel?? 

Pain is subjective. No one but you knows how you really feel. When you have RSD, pain is at the core of your treatment and medications. Nurses and doctors constantly ask you to measure your pain on a scale of 1 to 10, or by pointing to a series of faces. What do you do… Continue reading How Do You Feel??