Blog · Complex Regional Pain Syndrome · CRPS · Invisible Illness · legacy · Life · Personal · Platform · Reflex Sympathetic Dystrophy · RSD · Spooners · Truth To Power

Letter To Families and Friends of CRPS/RSD Patients.

I have been trying to find the right words to describe to my family members and friends for almost 4 years on what it's like to be living with CRPS/RSD. Some people get it.. to a degree and some just can't separate that I look "fine" or "normal". To them it's hard that they don't… Continue reading Letter To Families and Friends of CRPS/RSD Patients.

Blog · Complex Regional Pain Syndrome · CRPS · Invisible Illness · Life · Platform · Reflex Sympathetic Dystrophy · RSD · Spooners · Truth To Power

Definition of CRPS

CRPS-I is a syndrome characterized by a continuing (spontaneous and/or evoked) regional pain that is seemingly disproportionate in time or degree to the usual course of pain after trauma or other lesion. The pain is regional (not in a specific nerve territory or dermatome) and usually has a distal predominance of abnormal sensory, motor, sudomotor,… Continue reading Definition of CRPS

Blog · Complex Regional Pain Syndrome · CRPS · honor · Invisible Illness · legacy · Life · Personal · Platform · Reflex Sympathetic Dystrophy · RSD · Sports · Truth To Power

Pain Makes Us Who We Are 

  Let your pain empower you, Not all of us are destined to break. And if you find yourself broken, Allow for each broken piece To faithfully make sense I would never put public speaking on my "special skills" list, but over these past years I have been called to do just that more than a number of… Continue reading Pain Makes Us Who We Are 

Blog · Complex Regional Pain Syndrome · CRPS · Invisible Illness · legacy · Life · Personal · Platform · Reflex Sympathetic Dystrophy · RSD · Truth To Power

Ten Steps To Overcoming Chronic Pain

YES, CRPS/RSD IS A TYPE OF CHRONIC PAIN!  Chronic pain is a serious problem but is often made worse by misinformation, negative attitudes and beliefs, outdated ideas, negative emotions. It is recognised that chronic pain is often mismanaged, not because we lack adequate treatments, but because of fear and ignorance. These steps are designed to… Continue reading Ten Steps To Overcoming Chronic Pain

#JusticeForJoey · #LightItUpJoey · Blog · Connecticut · honor · Joey Gingerella · legacy · Life · Personal · Platform · Sports · Truth To Power

Honoring A Hero!

I can FINALLY tell the world what I’ve been working on with my Representative Chris Conley since November of last year! After the tragic lose of our friend and family member Joey Gingerella, I reached out to our high school Fitch High to see if they could have a plaque or something that could be… Continue reading Honoring A Hero!