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Living With Burning Pain: One Patient’s CRPS Story.

Last year I did an online article for Practical Pain Management about my life with CRPS. Here is just a piece of the article.. For Margaret, now 24, the terrible burning sensation that heralded the onset of CRPS began only a few days after the surgery.  She’d expected some discomfort. Because bunions run in her… Continue reading Living With Burning Pain: One Patient’s CRPS Story.

Blog · Complex Regional Pain Syndrome · CRPS · Invisible Illness · legacy · Life · Personal · Platform · Reflex Sympathetic Dystrophy · RSD · Spooners · Truth To Power

Letter To Families and Friends of CRPS/RSD Patients.

I have been trying to find the right words to describe to my family members and friends for almost 4 years on what it's like to be living with CRPS/RSD. Some people get it.. to a degree and some just can't separate that I look "fine" or "normal". To them it's hard that they don't… Continue reading Letter To Families and Friends of CRPS/RSD Patients.

Blog · Complex Regional Pain Syndrome · CRPS · Invisible Illness · Life · Platform · Reflex Sympathetic Dystrophy · RSD · Spooners · Truth To Power

Definition of CRPS

CRPS-I is a syndrome characterized by a continuing (spontaneous and/or evoked) regional pain that is seemingly disproportionate in time or degree to the usual course of pain after trauma or other lesion. The pain is regional (not in a specific nerve territory or dermatome) and usually has a distal predominance of abnormal sensory, motor, sudomotor,… Continue reading Definition of CRPS

Blog · Complex Regional Pain Syndrome · CRPS · honor · Invisible Illness · legacy · Life · Personal · Platform · Reflex Sympathetic Dystrophy · RSD · Sports · Truth To Power

Pain Makes Us Who We Are 

  Let your pain empower you, Not all of us are destined to break. And if you find yourself broken, Allow for each broken piece To faithfully make sense I would never put public speaking on my "special skills" list, but over these past years I have been called to do just that more than a number of… Continue reading Pain Makes Us Who We Are 

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Rebel To The End!

I tell myself I’ll make it, rebel to the end. Try to look away from the colors turning in my skin, won’t let this bring me down and diminish me from within. I try to bring my soul fire out and not let it take me through my skin. This pain can try to bury… Continue reading Rebel To The End!