Having CRPS you have no idea what the day will bring! CRPS is an EVERYDAY thing! It’s been a long day! I’ve been in and out of one urgent care clinic to be sent to another for a full work up. I left the house at 9:30ish this morning and didn’t get back home until… Continue reading CRPS Is An Everyday Thing!
A few weeks ago I was contacted by Diamond Headache Clinic, the oldest and largest headache center in Chicago, Illinois. They asked me to help raise awareness about invisible illnesses by sharing their Slideshow. This incredible Clinic created a presentation about the different types of migraine headaches and symptoms in children. Children between the ages of… Continue reading Diamond Headache Clinic
The stories we want to hear the least are the ones we need to hear the most. To my fellow Sister Survivors and Army Of Women. I’m so proud of every one you! You showed no fear and looked evil in the eye for the very last time! As a former USA Gymnastics gymnast, who… Continue reading Dear Sister Survivors
Dear World, My name is Margaret Twitty and I am a 27 year old suffering with Complex Regional Pain Syndrome/ Reflex Sympathetic Dystrophy also called (CRPS/RSD). You may know me personally or you may not, but who I am is not really important, only the fact that I live in chronic pain. Having chronic pain… Continue reading A Letter To The World
Raising Money For a Cause I Care About: On February 17, 2015 I was diagnosed with CRPS/RSD a rare and non-curable illness that has changed my life in so many ways. I have decided that instead of making my birthday all about me I want to make it all about finding a cure for this… Continue reading Birthday Donations
This post I've been debating on writing because it's something that not even my parents know about. I was sexual mistreated at a young age by a then family friend. It's taken me years to remember what happened because at a young age you don't know what's right or wrong but as I grew up… Continue reading #MeToo
Let your pain empower you, Not all of us are destined to break. And if you find yourself broken, Allow for each broken piece To faithfully make sense I would never put public speaking on my "special skills" list, but over these past years I have been called to do just that more than a number of… Continue reading Pain Makes Us Who We Are
Chronic Pain: A Burden Often Shared By JANE E. BRODY Chronic pain is a family problem. When people experience unrelenting pain, everyone they live with and love is likely to suffer. The frustration, anxiety, stress and depression that often go with chronic pain can also afflict family members and friends who feel helpless to provide… Continue reading Chronic Pain: A Burden Often Shared
Theses are the moments that help change our lives, these are the very collisions that help make us who we are.
So often we find ourselves in situations where people are trying their best to help us when in reality they very well may be hurting us. I can see how being a loved one of someone with CRPS can be challenging in more ways than one. You may find yourself not knowing what we want… Continue reading 5 Do’s and Don’ts When It Comes to People with CRPS