Complex Regional Pain Syndrome · CRPS · Reflex Sympathetic Dystrophy · RSD

Are Doctors Being Trained Enough To Treat Chronic Pain?

Are Doctors Being Trained Enough To Treat Chronic Pain? Not enough doctors have been adequately trained to treat chronic pain, according to a new review of studies. Published in the Journal of the American Osteopathic Association, researchers from Henry Ford Hospital reviewed studies and standards regarding the management of chronic pain in patients, as well… Continue reading Are Doctors Being Trained Enough To Treat Chronic Pain?

Blog · Complex Regional Pain Syndrome · CRPS · Invisible Illness · legacy · Life · Personal · Photography · Platform · Reflex Sympathetic Dystrophy · RSD · Truth To Power

You Can Rebuild

“The real heroes are those who rebuild their lives using adversity as a stepping stone to greatness in the midst of the chaos life has thrown at them.” Nikki Rowe

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Blog · Complex Regional Pain Syndrome · CRPS · Invisible Illness · legacy · Life · Personal · Platform · Reflex Sympathetic Dystrophy · RSD · Sports · Truth To Power

Pain Matters Documentary Film 

Discovery Channel Documentary "Pain Matters" Chronicles the Burdens of Living with Chronic Pain. “Pain Matters” chronicles the stories of six people with pain and their loved ones: a U.S. Navy veteran who sustained debilitating injuries while serving in Iraq, a two-time Stanley Cup-winning hockey player, a car accident survivor, and individuals with osteoarthritis, fibromyalgia and… Continue reading Pain Matters Documentary Film 

Complex Regional Pain Syndrome · CRPS · Reflex Sympathetic Dystrophy · RSD

Paula Abdul: Putting the Spotlight on Rare Disease 

SMILING THROUGH THE PAIN: Paula Abdul maintains a positive attitude throughout her battle with chronic pain caused by RSD. Pop icon, Paula Abdul, opens up about her daily struggle with Reflex Sympathetic Dystrophy. Mediaplanet: What is RSD and how does it manifest itself? How would you describe RSD? Paula Abdul: RSD stands for “Reflex Sympathetic Dystrophy.”  It’s… Continue reading Paula Abdul: Putting the Spotlight on Rare Disease 

Blog · Complex Regional Pain Syndrome · CRPS · Invisible Illness · legacy · Life · Personal · Photography · photoshoot · Reflex Sympathetic Dystrophy · RSD · Truth To Power

Don’t Give Up On Me!

You deserve people who don’t give up on you, it takes strong healthy people in your life, people who don’t crumble easy to stay strong with you through this. Of course if you have CRPS, most of your fair weather friends are probably gone. I’ve found the ones still here are pretty legit at this… Continue reading Don’t Give Up On Me!

#JusticeForJoey · #LightItUpJoey · Blog · Connecticut · honor · Joey Gingerella · legacy · Life · Personal · Platform · Sports · Truth To Power

Honoring A Hero!

I can FINALLY tell the world what I’ve been working on with my Representative Chris Conley since November of last year! After the tragic lose of our friend and family member Joey Gingerella, I reached out to our high school Fitch High to see if they could have a plaque or something that could be… Continue reading Honoring A Hero!

Blog · Clothing Line · Complex Regional Pain Syndrome · CRPS · Fashion · honor · Invisible Illness · legacy · Life · Personal · Photography · photoshoot · Platform · Reflex Sympathetic Dystrophy · RSD · Truth To Power

She’s Fit To Lead Article 

"We’re big believers in Margaret Twitty’s favorite saying,"Know The Person Not The Disability.” But sometimes, learning more about a disability is an important way to understand what others around us are going through. With that in mind, we asked Margaret Twitty, founder of the 2/17 clothing line and Complex Regional Pain Syndrome sufferer to share… Continue reading She’s Fit To Lead Article 

Blog · Complex Regional Pain Syndrome · CRPS · Invisible Illness · legacy · Life · Personal · Platform · Reflex Sympathetic Dystrophy · RSD · Truth To Power

5 Do’s and Don’ts When It Comes to People with CRPS

So often we find ourselves in situations where people are trying their best to help us when in reality they very well may be hurting us. I can see how being a loved one of someone with CRPS can be challenging in more ways than one. You may find yourself not knowing what we want… Continue reading 5 Do’s and Don’ts When It Comes to People with CRPS

Blog · Complex Regional Pain Syndrome · CRPS · honor · Invisible Illness · legacy · Life · Personal · Photography · photoshoot · Platform · Reflex Sympathetic Dystrophy · RSD · Truth To Power

Move Forward PT 

“I am 24 and performed gymnastics practically my whole life. I was recently diagnosed with Complex Regional Pain Syndrome (CRPS), a rare neurological disorder. It began after I had suffered trauma to my right foot when a horse stepped on it. A few months later I had surgery on the same foot to correct a… Continue reading Move Forward PT 

Blog · Complex Regional Pain Syndrome · CRPS · Invisible Illness · legacy · Life · Personal · Platform · Reflex Sympathetic Dystrophy · RSD · Truth To Power

Chronic Pain: A Burden Often Shared

Chronic Pain: A Burden Often Shared By JANE E. BRODY Chronic pain is a family problem. When people experience unrelenting pain, everyone they live with and love is likely to suffer. The frustration, anxiety, stress and depression that often go with chronic pain can also afflict family members and friends who feel helpless to provide… Continue reading Chronic Pain: A Burden Often Shared