Explaining what it's like to live with RSD/CRPS, day after day When we try and explain to others who don't live with us, and even sometimes those who do live with us- and often take for granted how exhausting even little things are with this disease, we are often met with disbelief. When you fight… Continue reading OUR BRAIN IS ALWAYS ON!
Tag: RSD
CRPS/RSD & HOSPITAL PROTOCOL Hospital MUST Follow!
Hospital Protocol for the CRPS Patient: Handle With Care! Reflex Sympathetic Dystropy (RSD) also known as Complex Regional Pain Syndrome (CRPS) is a chronic condition characterized by severe burning pain, pathological changes in bone and skin, excessive sweating, tissue swelling and extreme sensitivity to touch. People afflicted with CRPS are extraordinarily sensitive to certain stimuli, such as… Continue reading CRPS/RSD & HOSPITAL PROTOCOL Hospital MUST Follow!
Traveling With Chronic Illness
( Taken From Chronic Curve) Traveling With Chronic Illness Be prepared When Packing. What does this mean? Start packing early. Make a list with everything you’ll need and check items off as you go. *Packing ahead of time allows you to rest your body the days before the trip. Frantically packing the night before will only… Continue reading Traveling With Chronic Illness
Our Emotional Journey
This post is about the stages of emotions we sometimes experience when you are living with CRPS/RSD or other painful Chronic debilitating illnesses. CRPS/RSD Is A Journey Through Many Emotions. Many individuals living with RSD/CRPS or other debilitating illnesses find it hard to explain to loved ones the many emotions that they are going through.… Continue reading Our Emotional Journey
A Letter to Patients With Chronic Disease
A Doctor's Letter to Patients with a Chronic Illness As chronic pain patients, we often get frustrated and even angry with doctors. We just want a doctor who will understand how much pain we're in and will try to help us get some relief. But sometimes doctors seem like they'd rather not be bothered with… Continue reading A Letter to Patients With Chronic Disease
My Journey With CRPS/RSD 