Raising Money For a Cause I Care About: On February 17, 2015 I was diagnosed with CRPS/RSD a rare and non-curable illness that has changed my life in so many ways. I have decided that instead of making my birthday all about me I want to make it all about finding a cure for this… Continue reading Birthday Donations
Let your pain empower you, Not all of us are destined to break. And if you find yourself broken, Allow for each broken piece To faithfully make sense I would never put public speaking on my "special skills" list, but over these past years I have been called to do just that more than a number of… Continue reading Pain Makes Us Who We Are
Chronic Pain: A Burden Often Shared By JANE E. BRODY Chronic pain is a family problem. When people experience unrelenting pain, everyone they live with and love is likely to suffer. The frustration, anxiety, stress and depression that often go with chronic pain can also afflict family members and friends who feel helpless to provide… Continue reading Chronic Pain: A Burden Often Shared
Theses are the moments that help change our lives, these are the very collisions that help make us who we are.
So often we find ourselves in situations where people are trying their best to help us when in reality they very well may be hurting us. I can see how being a loved one of someone with CRPS can be challenging in more ways than one. You may find yourself not knowing what we want… Continue reading 5 Do’s and Don’ts When It Comes to People with CRPS
“I am 24 and performed gymnastics practically my whole life. I was recently diagnosed with Complex Regional Pain Syndrome (CRPS), a rare neurological disorder. It began after I had suffered trauma to my right foot when a horse stepped on it. A few months later I had surgery on the same foot to correct a… Continue reading Move Forward PT
Hi my name is Margaret Twitty and I live in Connecticut. For 18 years I was an Athlete more specifically I was a Gymnast for 18 years. But that all changed on February 17, 2015 when I was diagnosed with CRPS. CRPS is a rare illness/diagnosis called 'Complex Regional Pain Syndrome' (CRPS). CRPS is… Continue reading Sharing My Story
YES, CRPS/RSD IS A TYPE OF CHRONIC PAIN! Chronic pain is a serious problem but is often made worse by misinformation, negative attitudes and beliefs, outdated ideas, negative emotions. It is recognised that chronic pain is often mismanaged, not because we lack adequate treatments, but because of fear and ignorance. These steps are designed to… Continue reading Ten Steps To Overcoming Chronic Pain
Thank You all for your kind words during this rough time in my life once again. I know many of you had no idea that I was going to be having surgery yet again and on the same Right Foot that I was diagnosed with CRPS last year in February. It was very hard to… Continue reading My October 21, 2016 Letter For You.
There is beauty in the courage of the fragile fighter. Those that persevere, despite all they’ve been through. Yesterday and today I've been getting emails from two women who have been diagnosed with CRPS and don't know what to do. One lives in Canada and the other in Minnesota. It's crazy that I'm… Continue reading Beauty In The Fragile Fighter