Blog · Complex Regional Pain Syndrome · CRPS · Invisible Illness · legacy · Life · Pain · Personal · Platform · Reflex Sympathetic Dystrophy · RSD · Spooners

A Letter to Children Diagnosed With CRPS, From an Adult That’s Been There.

Dear child with CRPS, You are young, and this diagnosis has not come at an ideal time in your life. I mean, is there an ideal time to be diagnosed with complex regional pain syndrome (CRPS) — one of the most painful conditions known? Let me assure you though, everything is going to be OK. You will… Continue reading A Letter to Children Diagnosed With CRPS, From an Adult That’s Been There.

Blog · Complex Regional Pain Syndrome · Connecticut · COVID-19 · CRPS · Invisible Illness · Life · Platform · Reflex Sympathetic Dystrophy · RSD · Spooners

COVID Vaccine and CRPS

Yesterday I got my first dose of the COVID Vaccine! I got the Moderna. For those who know me and for those who read this blog know that I have CRPS so I was worried about the after effects of the vaccine but luckily nothing too serious happened! I did feel tired and had a… Continue reading COVID Vaccine and CRPS

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Natural Ways to Help Nerve Pain

If you experience nerve pain, then you may know how debilitating this pain can be. From a stabbing pain that may hit you in the middle of the night to uncontrolled nerve pain that is strong and persistent; you would go to any lengths possible to find a way to help alleviate or control this pain. If you… Continue reading Natural Ways to Help Nerve Pain

Blog · Complex Regional Pain Syndrome · CRPS · honor · Invisible Illness · legacy · Life · Personal · Photography · photoshoot · Platform · Reflex Sympathetic Dystrophy · RSD · Spooners · Truth To Power

Living With Burning Pain: One Patient’s CRPS Story.

Last year I did an online article for Practical Pain Management about my life with CRPS. Here is just a piece of the article.. For Margaret, now 24, the terrible burning sensation that heralded the onset of CRPS began only a few days after the surgery.  She’d expected some discomfort. Because bunions run in her… Continue reading Living With Burning Pain: One Patient’s CRPS Story.

Blog · Complex Regional Pain Syndrome · CRPS · Invisible Illness · legacy · Life · Personal · Platform · Reflex Sympathetic Dystrophy · RSD · Spooners · Truth To Power

Letter To Families and Friends of CRPS/RSD Patients.

I have been trying to find the right words to describe to my family members and friends for almost 4 years on what it's like to be living with CRPS/RSD. Some people get it.. to a degree and some just can't separate that I look "fine" or "normal". To them it's hard that they don't… Continue reading Letter To Families and Friends of CRPS/RSD Patients.