Blog · Complex Regional Pain Syndrome · CRPS · Invisible Illness · legacy · Life · Personal · Photography · Platform · Reflex Sympathetic Dystrophy · RSD · Truth To Power

You Can Rebuild

“The real heroes are those who rebuild their lives using adversity as a stepping stone to greatness in the midst of the chaos life has thrown at them.” Nikki Rowe

Advertisements
Blog · Complex Regional Pain Syndrome · CRPS · Invisible Illness · legacy · Life · Personal · Platform · Reflex Sympathetic Dystrophy · RSD · Sports · Truth To Power

Pain Matters Documentary Film 

Discovery Channel Documentary "Pain Matters" Chronicles the Burdens of Living with Chronic Pain. “Pain Matters” chronicles the stories of six people with pain and their loved ones: a U.S. Navy veteran who sustained debilitating injuries while serving in Iraq, a two-time Stanley Cup-winning hockey player, a car accident survivor, and individuals with osteoarthritis, fibromyalgia and… Continue reading Pain Matters Documentary Film 

Blog · Complex Regional Pain Syndrome · CRPS · Invisible Illness · legacy · Life · Personal · Photography · photoshoot · Reflex Sympathetic Dystrophy · RSD · Truth To Power

Don’t Give Up On Me!

You deserve people who don’t give up on you, it takes strong healthy people in your life, people who don’t crumble easy to stay strong with you through this. Of course if you have CRPS, most of your fair weather friends are probably gone. I’ve found the ones still here are pretty legit at this… Continue reading Don’t Give Up On Me!

#JusticeForJoey · #LightItUpJoey · Blog · Connecticut · honor · Joey Gingerella · legacy · Life · Personal · Platform · Sports · Truth To Power

Honoring A Hero!

I can FINALLY tell the world what I’ve been working on with my Representative Chris Conley since November of last year! After the tragic lose of our friend and family member Joey Gingerella, I reached out to our high school Fitch High to see if they could have a plaque or something that could be… Continue reading Honoring A Hero!

Blog · Clothing Line · Complex Regional Pain Syndrome · CRPS · Fashion · honor · Invisible Illness · legacy · Life · Personal · Photography · photoshoot · Platform · Reflex Sympathetic Dystrophy · RSD · Truth To Power

She’s Fit To Lead Article 

"We’re big believers in Margaret Twitty’s favorite saying,"Know The Person Not The Disability.” But sometimes, learning more about a disability is an important way to understand what others around us are going through. With that in mind, we asked Margaret Twitty, founder of the 2/17 clothing line and Complex Regional Pain Syndrome sufferer to share… Continue reading She’s Fit To Lead Article 

Blog · Complex Regional Pain Syndrome · CRPS · Invisible Illness · legacy · Life · Personal · Platform · Reflex Sympathetic Dystrophy · RSD · Truth To Power

5 Do’s and Don’ts When It Comes to People with CRPS

So often we find ourselves in situations where people are trying their best to help us when in reality they very well may be hurting us. I can see how being a loved one of someone with CRPS can be challenging in more ways than one. You may find yourself not knowing what we want… Continue reading 5 Do’s and Don’ts When It Comes to People with CRPS

Blog · Complex Regional Pain Syndrome · CRPS · honor · Invisible Illness · legacy · Life · Personal · Photography · photoshoot · Platform · Reflex Sympathetic Dystrophy · RSD · Truth To Power

Move Forward PT 

“I am 24 and performed gymnastics practically my whole life. I was recently diagnosed with Complex Regional Pain Syndrome (CRPS), a rare neurological disorder. It began after I had suffered trauma to my right foot when a horse stepped on it. A few months later I had surgery on the same foot to correct a… Continue reading Move Forward PT 

Blog · Complex Regional Pain Syndrome · CRPS · Invisible Illness · legacy · Life · Personal · Platform · Reflex Sympathetic Dystrophy · RSD · Truth To Power

Chronic Pain: A Burden Often Shared

Chronic Pain: A Burden Often Shared By JANE E. BRODY Chronic pain is a family problem. When people experience unrelenting pain, everyone they live with and love is likely to suffer. The frustration, anxiety, stress and depression that often go with chronic pain can also afflict family members and friends who feel helpless to provide… Continue reading Chronic Pain: A Burden Often Shared

Blog · Complex Regional Pain Syndrome · CRPS · Invisible Illness · legacy · Life · Personal · Photography · Platform · Reflex Sympathetic Dystrophy · RSD · Truth To Power

There is Still Hope

CRPS to me can feel like this endless long hallway of pain. I know the end of this pain has to be there at the end of this, but it goes on and on and I can’t ever reach it. I still hold hope somewhere deep in this heart. 🧡🧡🧡

Blog · Complex Regional Pain Syndrome · CRPS · Invisible Illness · legacy · Life · Personal · Photography · Platform · Reflex Sympathetic Dystrophy · RSD · Truth To Power

Free from the shackles of chronic pain.

I have been following this AMAZING CRPS/RSD Warrior on Instagram.. ALL her posts are about the fight and struggle that we all deal with by living with this cruel diagnosis! I'll be posting her photos/art work on here because her words are on point and hits deep down! Here's the first post- • “If I… Continue reading Free from the shackles of chronic pain.