Hi my name is Margaret, founder of the blog My Journey With CRPS/RSD. An all around blog that focuses on different aspects and topics of dealing with Complex Regional Pain Syndrome.
Here’s a few things about me!
I’m a proud 90’s baby! Born in Ocean Side (San Diego), California but raised in Southeast Connecticut.. (I fly both flags). Born to two proud Navy Veterans. I’m older than my brother by only 16 months. I’m an Aunt to a sweet little girl.
I’m proud of my mixed race heritage. I love Southern Food (Memphis BBQ all the way!). I’m part Southern and part Midwestern. I love my family even though they drive me crazy!
My Life Before CRPS
My life before being diagnosed was so different than it is today!
I was an athlete for my years, manly I was a gymnast. I was also a cheerleader, dancer, volleyball player, and so much more.
My life consisted of being with friends and having fun all the time! I was able to hike and run without worrying about if my foot would hurt. I was able to just be free and now it’s a different experience, a different type of normal.
Why I Blog!
I blog because having CRPS is rare and can be the last thing you expected. I blog because I want people to know that they are not alone in their struggles and in their journey. We may not always agree on everything but what we do agree on can help and can change a life!
I see you, I understand what you’re going through, it’s not all in your head, what you feel it’s 100% REAL! I’m in your corner and I’m here to help you and to be your voice!
XOXO
Margaret
My Journey With CRPS/RSD 
tell me your RSD stories for a book
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I’ll make a post about it and you can take what you need for your book.
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I was diagnosed with RSD when I was 16 years old. I know the pain you are dealing with and my heart breaks for you. I ultimately ended up at The Pain Clinic at John Hopkins in Baltimore. They saved my life and I will forever be grateful.
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Hi Margaret! I just stumbled across your blog. I’m an otherwise healthy, athletic 51 year old living in Ariziona and I acquired CRPS in my left foot after bunion surgery in August of 2021 where the surgeon accidentally trapped a tendon under the plate/hardware. I had 3 surgeries in a 10 month span and an left with a fused big toe, and a completely numb, achy foot that feels like all the things you’ve described in the posts I’ve read thus far.
I’m trying to get approval for a DRG nerve stimulator, but I’ve been declined multiple times by my insurance company. This whole thing is a life altering nightmare, but I push through every day just like you.
What treatment options have you tried?
Samantha
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Great write-up, Margaret! Your journey with CRPS is truly inspiring, and your blog is a beacon of hope for those navigating similar challenges. It’s empowering to see how you’ve turned your personal struggles into a platform for support and awareness. How has blogging impacted your own healing process? Do you find it therapeutic? Keep sharing your strength!
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