Hi I’m Margaret Twitty and I have CRPS/RSD!
For 18 years I was an athlete more specifically I was a Gymnast.
But that all changed on February 17, 2015 when I was diagnosed with CRPS. CRPS is a rare illness/diagnosis called ‘Complex Regional Pain Syndrome’ (CRPS). Having this disease is a very cruel one but I’m not alone in this battle I have my family and friends to support me and also the estimated six to eight million other Americans diagnosed with CRPS/RSD each year.
CRPS is a neurological disorder in which my brain keeps telling my right foot that it’s in pain 24/7 and I’ll have it for the rest of my life until there is a cure. That is why I’m contacting you because I’m hoping that you could help me share my story and the stories of the millions of others whom are impacted by this cruel and unheard of diagnosis. This topic needs to be talked about, not just because it’s so personal to me, but for the impact it has taken on the caregivers who are going non-stop trying to make sure that I everyone is always safe and okay.
I hope that you’ll give me the opportunity to share and raise my voice for those who can’t. For sharing my story and getting it heard. I’m making my cruel struggle into a my strength and I want everyone to know that there is someone who will ALWAYS be in their corner fighting for them and for what it right!
*(There are no set statistics on how many people actually have it because so many of them go undiagnosed)
I’m moving past it and not letting it define me. I have this diagnosis yes, but it’s not who I am! when I walk it feels like pins and needles, I’m a normal 27 yr old who just has to be more careful about current things when it comes to my right foot.
Each person battling CRPS/RSD is a study in courage their families and friends are some of the most courageous people I’ve ever seen. Each one has a story that will inspire others and not to give up and to live life to its fullest. I am One Story, One Journey. My hope is that I can inspire you to help in the fight for a cure and to all those out there on the same journey as I am I say to you keep Strong and Journey On!
Sincerely,
Margaret Twitty
Articles Done about me and my diagnosis.
http://www.theday.com/local/20160620/groton-woman-gets-cruel-diagnosis#comments
http://www.shesfittolead.com/cprs/
My Journey With CRPS/RSD 