Sharing My Story

Hi my name is Margaret Twitty and I live in Connecticut.

For 18 years I was an Athlete more specifically I was a Gymnast for 18 years.

But that all changed on February 17, 2015 when I was diagnosed with CRPS. CRPS is a rare illness/diagnosis called ‘Complex Regional Pain Syndrome’ (CRPS).

CRPS is a neurological disorder in which my brain keeps telling my right foot that it’s in pain 24/7 and I’ll have it for the rest of my life until there is a cure. That is why I’m contacting you because I’m hoping that you could help me share my story and the stories of the millions of others whom are impacted by this cruel and unheard of diagnosis. This topic needs to be talked about, not just because it is so personal to me because I have it but because I’ve seen the impact it has taken on the caregiver who is going non-stop trying to make sure that I am always okay and safe.

I hope that you’ll give me the opportunity to share and raise my voice for those who can’t. For sharing my story and getting it heard, you’re also helping to share the stories of 20 Million Americans and 5 Billion Worldwide whom are diagnosed with this cruel illness.

I want to make this struggle into a Strength and I want everyone to know that there is someone who will ALWAYS be in their corner… ALWAYS!

*(There are no set statistics on how many people actually have it because many go undiagnosed)